Consumer Opportunities
Help Us Improve Kidney Care – Take Our Survey!
We’re inviting people living with chronic kidney disease (CKD) or on dialysis (haemodialysis or peritoneal dialysis) to take part in an important study.
We’re using a survey called SONG-Life Participation (SONG-LP) to better understand how kidney disease affects daily life. This measure has already been tested in kidney transplant patients, and now we want to ensure it works well for people with CKD and those on dialysis.
What’s involved?
✔️ Complete a short online survey at three time points: now, in one week, and in 12 months
✔️ Each survey takes about 15 minutes
✔️ You’ll need to provide an email address (to receive the survey) and your name (for consent)
✔️ Open to adults 18+ who speak English
This study has been approved by The University of Sydney’s Human Research Ethics Committee (HREC).
Your input will help improve how we measure and address the impact of kidney disease on daily life.
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Informal Patient Discussion with Commonwealth Scientific & Industrial Research Organisation (CSIRO)
CSIRO is inviting patients to take part in an informal group discussion to help prioritise research areas that truly reflect patient needs.
Why Participate?
Help shape research priorities that can directly impact patient care.
Connect with other CKD patients, healthcare professionals, and researchers.
Who Can Join: CKD patients, as well as healthcare professionals and researchers.
Format: Flexible – join us via phone, Zoom, or in person!
Please note that participation in this working group is on a voluntary basis, and there is no financial remuneration.
Interested? Know someone who might be? Contact wayne.leifert@csiro.au or maryam.hor@csiro.au
Still want to know more? Please contact us.