What is Kidney Bites?
Kidney Bites is an online patient and caregiver community where you can meet and connect with others who have a lived experience of kidney disease. It’s a safe and inclusive place to ask questions, share stories, exchange ideas, learn new things, and hear about ways to be involved in research and other engagement opportunities.
Who should join Kidney Bites?
Our team warmly encourages anyone living with kidney disease and their family members to join the Kidney Bites community, especially if you are curious about learning more about research or have had some experience working with researchers in the past.
Why should I join?
When and where can I join?
Meetings are held in the last week of each month. We encourage you to get comfy, get a drink, or a bite to eat, and join us from the comfort of your own home. Kidney Bites will occur via Zoom (for now) and the meetings will go for one hour. Meetings time vary so please register to receive the updated time for your state or territory.
Wednesday 28th February 4.30-5.30pm AEDT. Topic: Planning for 2024.
What do I need to join?
All you need is an email account and a computer or phone with internet access. You don’t need a Zoom account. Once you have registered, a link will be emailed to you and all you need to do is click on it to join.
What if my computer doesn’t have a webcam (camera)?
That’s okay, you don’t need a webcam to join. You will be able to listen and speak during the meeting and view the videos of other participants.
What if I’m hearing impaired?
We will enable the closed captions function in Zoom at the start of every meeting. Once you have joined the meeting, you can click on the “CC” icon at the bottom of the screen to see a live transcript of the discussion.
Consumer perspective on Kidney Bites
Sounds great sign me up.
Kidney Bites and Privacy
The type of personal information that BEAT-CKD will collect from you with your consent will vary depending on the specific circumstances in which the information is obtained. This may include personal information such as your name, contact information, email address, demographic data, username, and IP address. Additionally, we may gather information about your skills and areas of interest, both professional and personal. Furthermore, we may collect survey information and data from events you attend or subscribe to. For more information, please see our privacy pages.
Email our patient engagement officer Amanda Sluiter for more information or support email@example.com
The Kidney Bites Network does not provide medical advice. The discussions and information provided at Kidney Bites is in no way intended to be a substitute for professional medical advice. Always seek the advice of your doctor or other qualified health care provider with any questions you may have regarding your medical condition or treatment.