Consumer and community engagement
Consumer and Community Health Research Network
Consumer and community involvement
Priority setting partnerships, clinical research, methods of consumer involvement, measuring and reporting involvement.
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Health Consumers NSW
Health consumer engagement
Tools and resources for health consumers, consumer representatives, health services, consumer/community organisations.
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Australian Clinical Trials Alliance
Consumer stories
What is consumer and community involvement and consumer stories?
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Monash Partners
Consumer engagement
What is consumer and community involvement?
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Information about research and being involved
Australasian Kidney Clinical Trial Network
What is a clinical trial?
Topics: consent forms, benefits of participating.
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Cochrane
What are systematic reviews?
Topics include: ‘What are systematic reviews?’, ‘Animated storyboard’, ‘What systematic reviews are and how they work.’
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Core Outcome Measures in Effectiveness Trials
What are core outcomes?
Involving patients and the public in improving research.
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Core Outcome Measures in Effectiveness Trials
What is a Delphi process?
What is a Delphi process? Plain language summary.
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Core Outcome Measures in Effectiveness Trials
What is a nominal group technique?
What is a nominal group technique? Plain language summary.
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Western Australian Health Translation Network
Consumers in research
Handbook on involving consumers in research including planning, policy, funding, evaluation and reporting.
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Renal Society of Australasia
Consumer engagement in kidney disease research
Read the article: Moving beyond tokenism: Past, present and the future of consumer engagement in kidney disease research.
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Monash Partners
Who are consumers in health research?
In this video, Susan Brunton, Health Advocate and Carer, describes her experience of being involved in research.
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Applications and other helpful tools
Zoom
Frequently asked questions
Zoom
Video and written instructions on Zoom
YouTube videos and written instructions on Zoom basics such as starting, installing, joining and more.
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Australian Commission on Safety and Quality in Healthcare
My healthcare rights.
Second edition of the Australian Charter of Healthcare Rights.
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Australian Commission on Safety and Quality in Healthcare
PROMS
What are PROMs, how are they used, and the Commission’s role in their use.
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