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# BEAT CKD

Better Evidence And Translation in Chronic Kidney Disease

## Sitemaps

- [XML Sitemap](https://beatckd.org/sitemap.xml): Contains all public & indexable URLs for this website.

## Posts

- [Events](https://beatckd.org/events/) - Past Events Launch and Workshop November 14, 2022 BEAT-CKD Centre for Research Excellence Partnering with Patients with Chronic Kidney Disease to Transform Care and Outcomes (CRE-PACT) – Launch and Workshop This event is for patients, family members, caregivers, clinicians and researchers with an interest in involving patients and caregivers in research. The launch and workshop
- [Newsletter # 25](https://beatckd.org/newsletter-25/) - Newsletter #25 July 2025 https://mailchi.mp/beatckd/crepact-newsletter-12759820
- [Newsletter # 24](https://beatckd.org/newsletter-24/) - Newsletter #24 April 2025 https://mailchi.mp/6dddfd9d6aa4/crepact-newsletter-12750860
- [Newsletter # 23](https://beatckd.org/newsletter-23/) - Newsletter #23 March 2025 https://mailchi.mp/8a55f4e6e787/crepact-newsletter-12722594
- [Special Reports](https://beatckd.org/annual-report-text/) - Workshop report: Patient and caregiver involvement in implementing health research in chronic kidney disease. Workshop report: Improving Diverse and Equitable Involvement of Patients and Caregivers in Research in CKD: Report of a Better Evidence and Translation – chronic kidney disease (BEAT-CKD) Workshop. Identifying strategies for disseminating research to patients with chronic kidney
- [Newsletter # 22](https://beatckd.org/newsletter-22/) - Newsletter # 22
- [Newsletter # 21](https://beatckd.org/newsletter-21/) - Newsletter # 21
- [Newsletter #20](https://beatckd.org/newsletter-20/) - Newsletter 20
- [Newsletter # 19](https://beatckd.org/newsletter-19-october-2024/) - Newsletter 19
- [Newsletter # 18](https://beatckd.org/newsletter-18/) - Newsletter 18
- [Newsletter # 17](https://beatckd.org/newsletter-17/) - Newsletter 17
- [Newsletter # 16](https://beatckd.org/newsletter-16/) - Newsletter 16
- [Newsletter # 15](https://beatckd.org/newsletter-15/) - Newsletter 15
- [PHOSPHATE trial opportunity](https://beatckd.org/phosphate-trial-opportunity/) - Pragmatic randomised trial of High Or Standard PHosphAte Targets in End-stage kidney disease Principal Investigators: Sunil Badve and Rathika Krishnasamy Clinical Project Manager: Laura Hickey Clinical Research Associate: Lisan Mulvey Website (if applicable) https://aktn.org.au/phosphate-trial/ Location (if online type platform e.g. Zoom). Zoom About your project / activity / event The PHOSPHATE trial is a dialysis study which explores whether controlling the level of
- [TACKLE IT TRIAL](https://beatckd.org/tackle-it-trial/) - Expression of interest to be a member of the Consumer Advisory Board What is the TACKLE IT Trial? This is a multicentre randomized controlled trial to treat T cell mediated rejection (TCMR). What is the problem? Kidney failure occurs when the kidneys lose their ability to filter waste and excess fluids from the blood effectively.
- [Newsletter 14](https://beatckd.org/newsletter-14/) - Newsletter 14
- [Newsletter 13](https://beatckd.org/newsletter-13/) - Newsletter 13
- [Newsletter 12](https://beatckd.org/newsletter-12/) - Newsletter 12
- [Newsletter 11](https://beatckd.org/newsletter-11/) - Newsletter #11 February 2024
- [BEAT-CKD End of Year Forum 2023 - 20/11/2023](https://beatckd.org/beat-ckd-end-of-year-forum-2023/) - Outline: The BEAT-CKD Centre for Research Excellence – Partnering with Patients to transform care and Outcomes (CRE-PACT) annual forum and workshop is designed for patients, family members, caregivers, clinicians, and researchers who are passionate about involving patients in research related to chronic kidney disease. This year's workshop will focus on the theme of "partnering with
- [Newsletter # 10](https://beatckd.org/newsletter-10/) - Newsletter # 10 December 2023
- [Newsletter # 9](https://beatckd.org/newsletter-9/) - Newsletter 9 November
- [Newsletter # 6](https://beatckd.org/newsletter-6/) - Newsletter # 6
- [Newsletter # 7](https://beatckd.org/newsletter-7/) - Newsletter # 7 September
- [Newsletter # 8](https://beatckd.org/newsletter-8/) - Newsletter # 8
- [Newsletter # 5](https://beatckd.org/newsletter-5/) - BEAT-CKD Newsletter #5
- [Kidney Bites - April](https://beatckd.org/kidney-bites-april/)
- [Newsletter # 4](https://beatckd.org/newsletter-4/) - Newsletter # 4 June 2023
- [Newsletter # 3](https://beatckd.org/newsletter-3/)
- [Kidney Bites - March](https://beatckd.org/kidney-bites-march/)
- [World Kidney Day](https://beatckd.org/up-and-coming-events/) - Held every year on the second Thursday in March, World Kidney Day is an awareness day that brings global attention to the importance of kidney health. The day aims to highlight the risk factors that can lead to Chronic Kidney Disease (CKD).
- [Interview with David Tunnicliffe](https://beatckd.org/interview-with-david-tunnicliffe-a-researchers-point-of-view/) - Interview with David Tunnicliffe: a researchers’ point of view What is your field of research? I work in the area of developing and implementing clinical practice guidelines on the care of people with chronic kidney disease. In this role, I search and collate research evidence and help to support guideline groups in developing recommendation for
- [Launch and Workshop](https://beatckd.org/beat-ckd-transform-care-outcomes/) - BEAT-CKD Centre for Research Excellence Partnering with Patients with Chronic Kidney Disease to Transform Care and Outcomes (CRE-PACT) - Launch and Workshop This event was for patients, family members, caregivers, clinicians and researchers with an interest in involving patients and caregivers in research. The launch and workshop provided a unique opportunity to hear about and
- [Newsletter #1 we have launched.](https://beatckd.org/newsletter-1-we-have-launched/) - The Better Evidence and Translation – Chronic Kidney Disease (BEAT-CKD) Centre of Research Excellence – Partnering with Patients with Chronic Kidney Disease to Transform Care and Outcomes (CRE-PACT) officially launched with a workshop and launch event held on Monday the 14th of November 2022. The launch provided a unique opportunity for health professionals, patients, caregivers, family
- [BEAT-CKD 2020 Forum](https://beatckd.org/newsletter-test/)
- [Patient-reported outcomes for trials in kidney disease – from protocols to reporting](https://beatckd.org/patient-reported-outcomes-for-trials-in-kidney-disease-from-protocols-to-reporting/) - Time and Date: February 2020 Venue: Holme Building, The University of Sydney Facilitators: Dr Angela Ju, Dr Martin Howell and Prof Kirsten Howard Cost: $180 standard, $80 students, $0 patients/caregivers research partners (includes catering and materials) Registration: Program: The detailed program will be available soon. There is wide recognition that trials need to measure and
- [Consumer Sessions – 54th ANZSN Annual Scientific Meeting 2018](https://beatckd.org/consumer-sessions-54th-anzsn-annual-scientific-meeting-2018/) - Date: ‘Research Update for Consumers’ Sunday September 9th and ‘Patient Workshop’ Wednesday September 12th 2018 Venue: International Convention Centre, Sydney & free live-streaming of the events About: Two consumer-directed sessions were co-convened by BEAT-CKD and Kidney Health Australia as part of the meeting (sponsored by ANZSN and Baxter Healthcare), with the presentation topics and session
- [BEAT-CKD Annual Research Forum & Workshops](https://beatckd.org/beat-ckd-annual-research-forum-workshops/) - Date: 23rd, 24th July – Research forum and 25th July – Workshops in 4 concurrent streams Time: 9:00 am to 4:30 pm – all days Venue: Translation Research Institute, 32 Kent Street, Woollongabba, Brisbane Dinner: 23rd July with PEXIVAS Trial update, @ Chu the Phat Restaurant, South Bank, 6.00pm to 8.30pm
- [Consumer involvement in research: workshops](https://beatckd.org/consumer-involvement-in-research-workshops/) - Three workshops on consumer involvement in research were held in Sydney, Adelaide and Brisbane. Download your copy of the Consumer Workshop Report.
- [Research workshop on Advanced Statistical Methods and Health Economics](https://beatckd.org/research-workshop-on-advanced-statistical-methods-and-health-economics/) - Date: Tuesday 5th and Wednesday 6th December 2017 Venue: Edward Ford Building, University of Sydney, main campus, Camperdown Cost: $50 for students, $100 for non-students Program for Advanced Statistics workshop Comments “The workshop was really valuable. It was great to learn about advanced statistical methods from experts in the field. I really appreciated the
- [BEAT-CKD Research Forum 23rd to 24th August 2017](https://beatckd.org/beat-ckd-research-forum-23rd-to-24th-august-2017/) - For more information, .
- [Crash course on conducting and publishing qualitative health research](https://beatckd.org/crash-course-on-conducting-and-publishing-qualitative-health-research/) - Date: Friday 28th July 2017 Venue: Westmead Institute for Medical Research Facilitator: Allison Tong Registration: $50 students, $100 non students and includes materials and catering (spaces are limited to 40) A one-day workshop on how to conduct and publish qualitative health research. Workshop objectives: – understand the purpose of qualitative research – compare key differences between qualitative and quantitative
- [BEAT-CKD Registries Workshop](https://beatckd.org/beat-ckd-registries-workshop/) - Time: 9:30 am to 4:30 pm Date: Monday 3rd April and Tuesday 4th April 2017 Venue: SA Health and Medical Research Institute, North Terrace, Adelaide, Australia Cost: This event is supported by the NHMRC BEAT-CKD Program Grant. Registration is free for members of the nephrology community. This event, hosted by ANZDATA, will include sessions on: 1) ANZDATA Registry –
- [Introductory workshop on implementation science with Jeremy Grimshaw](https://beatckd.org/introductory-workshop-on-implementation-science-with-jeremy-grimshaw/) - Time: 9:30 am to 4:30 pm Date: Wednesday 15th March 2017 Venue: The University of Sydney (venue details will be sent to confirmed registrants) Cost: Free registration and includes catering This one day workshop will cover: – What is implementation science? (Overview of field) – Identifying barriers and facilitators to implementation (Introduction to theory based
- [Reducing research waste: reporting and publishing biomedical research](https://beatckd.org/reducing-research-waste-reporting-and-publishing-biomedical-research/) - Time: 9:30 am to 4:30 pm Date: Tuesday 13th December 2016 Venue: Darlington Centre, The University of Sydney Facilitator: David Moher Cost: Free registration and includes catering This one day workshop will cover research waste, reporting guidelines, and predatory publishing. To download a copy of the program, CLICK HERE. Facilitator Biography // Professor David Moher is a
- [BEAT-CKD Inaugural Research Forum](https://beatckd.org/beat-ckd-inaugural-research-forum/) - Time: 10:00 am to 5:00 pm Dates: Wednesday 31st August to Thursday 1st September 2016 Venue: Darlington Centre, The University of Sydney Please click here for more information.
- [Crash course on conducting and publishing qualitative health research](https://beatckd.org/crash-course-on-conducting-and-publishing-qualitative-health-research-2/) - Time: 10:00 am to 5:00 pm Date: Friday 3rd June 2016 Venue: The Children’s Hospital at Westmead (venue details will be sent to confirmed registrants) Facilitator: Allison Tong Cost: Free registration and includes catering This interactive one-day workshop will focus on how to conduct and publish qualitative health research. Participants will: – understand the purpose
- [Introductory workshop on implementation science with Jeremy Grimshaw](https://beatckd.org/introductory-workshop-on-implementation-science-with-jeremy-grimshaw-2/) - Time: 10:00 am to 5:00 pm Date: Wednesday 9th March 2016 Venue: The University of Sydney (venue details will be sent to confirmed registrants) Cost: Free registration and includes catering This one day workshop will cover: – What is implementation science? (Overview of field) – Identifying barriers and facilitators to implementation (Introduction to theory based
- [Patient and Carer Forum’ – ISN World Congress of Nephrology 2019](https://beatckd.org/patient-and-carer-forum-isn-world-congress-of-nephrology-2019/) - The 2019 International Society of Nephrology (ISN) World Congress of Nephrology is being held at the Melbourne Convention Exhibition Centre, Melbourne (VIC) Australia, from April 12 – 15 2019. As part of the Congress, BEAT-CKD in partnership with Kidney Health Australia and ISN, are convening a Patient and Carer Forum on Sunday April 14th 2019,

## Pages

- [Home](https://beatckd.org/) - The Better Evidence and Translation – Chronic Kidney Disease (BEAT-CKD) Centre of Research Excellence – Partnering with Patients with Chronic Kidney Disease to Transform Care and Outcomes (CRE-PACT) will generate high-quality evidence that will be co-produced by patients, caregivers and health professionals.
- [Join our Network!](https://beatckd.org/contact/join-our-network/) - Are you a researcher, clinician, consumer, or healthcare provider who works in or has a special interest in kidney disease? If so, we invite you to join our network. Who are we? We are a collaborative research network aiming to improve the lives of people living with chronic kidney disease across Australia and New Zealand.
- [End of year Workshops and Forum](https://beatckd.org/work-shops-and-opportunities-2/) - You are Invited to the BEAT-CKD Annual Workshop and Forum Wednesday 19th November, 2025 We are pleased to invite you to the BEAT-CKD Annual Workshop and Forum for 2025. This year's theme is: From voices to action: conducting patient-centred research to transform kidney health policies. This free event is for anyone interested in improving kidney
- [Newsletter](https://beatckd.org/newsletter/)
- [Research Seminar Series](https://beatckd.org/for-researchers/research-seminar-series/) - Our Research Seminar Series offers patients, caregivers, clinicians, and researchers opportunities for sharing knowledge, networking, and collaboration. This includes fostering partnerships between patients, caregivers, and researchers. To receive the Zoom link for this and future sessions, please register below. You'll have invitations delivered straight to your inbox.
- [Contact](https://beatckd.org/contact/) - How to contact us Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, NSW 2145 Australia +612 9845 1492 beatckd.research@gmail.com 
- [Privacy Policy](https://beatckd.org/contact/privacy-policy/) - Your privacy is very important to us. For that reason, please read the following details carefully and get in contact with us if you have any questions. Who we are Our website address is https://beatckd.org. Information we collect Personal Information: We may collect personal information, such as name, contact information, and demographic details when voluntarily provided
- [Social Media](https://beatckd.org/for-patients-caregivers/twitter/)
- [Publications 2025](https://beatckd.org/publications-2025/) - Patient and caregiver perspectives on mental health in children and adolescents with chronic kidney disease Luca G Torrisi, Anita van Zwieten, Chandana Guha, Marianne Kerr, Amanda Sluiter, Anastasia Hughes, Jonathan C Craig, Aditi Sinha, Allison Dart, Allison A Eddy, Hui-Kim Yap, Stephen I Alexander, Susan L Furth, Joshua Kausman, Allison Jaure Clinical Kidney Journal,
- [Consumer Opportunities](https://beatckd.org/for-patients-caregivers/consumer-opportunities/) - Help Us Improve Kidney Care – Take Our Survey! We’re inviting people living with chronic kidney disease (CKD) or on dialysis (haemodialysis or peritoneal dialysis) to take part in an important study. We’re using a survey called SONG-Life Participation (SONG-LP) to better understand how kidney disease affects daily life. This measure has already been tested
- [Launch Videos](https://beatckd.org/launch-videos/) - BEAT-CKD Workshop Videos https://youtu.be/-wO4TV8Y7LA https://youtu.be/ZypihALj-6s
- [My Modules](https://beatckd.org/my-courses/) - Start Course Continue Visit Results
- [Kidney Bites Podcast](https://beatckd.org/kidney-bites-podcast/)
- [Workshops and Training Seminars](https://beatckd.org/governance-structure-2/skill-based-training-seminars/) - Save the Date – BEAT-CKD End of Year Workshop 2025 Join us for the BEAT-CKD End of Year Workshop 2025, bringing together a dedicated community of patients, caregivers, clinicians, researchers, and industry professionals. Date: [To be confirmed] Hybrid Event: Attend in person at select venues or join virtually This workshop provides an opportunity to connect,
- [Publications](https://beatckd.org/publications/) - BEAT-CKD Chief Investigator publications Publications 2016 Publications 2017 Publications 2018 Publications 2019 Publications 2020 Publications 2022 Publications 2023 Publications 2024 Publications 2025
- [Publications 2024](https://beatckd.org/publications-2024/) - Dominic Keuskamp, Christopher E. Davies, Shilpanjali Jesudason, Stephen P. McDonald, Hotspots of kidney failure: Analysing Australian metropolitan dialysis demand for service planning, Australian and New Zealand Journal of Public Health, Volume 48, Issue 4, 2024, 100161, ISSN 1326-0200,
- [Kidney Bites](https://beatckd.org/for-patients-caregivers/kidney-bites/) - What is Kidney Bites? Who should join Kidney Bites? Our team warmly encourages anyone living with kidney disease and their family members to join the Kidney Bites community, especially if you are curious about learning more about research or have had some experience working with researchers in the past. When and where can I join?
- [Posters and Presentations](https://beatckd.org/for-researchers/posters-and-presentations/) - Impacts of Research [pdf-embedder url="https://beatckd.org/wp-content/uploads/2024/10/Workshop-poster-1.pdf" title="Workshop poster 1"] Dissemination Summary
- [Theme 4: Better Treatment and Care](https://beatckd.org/theme-4-better-treatment-and-care/) - Theme Synopsis Across the spectrum of CKD, patients consistently emphasise the need for better treatment and care. This research theme will focus on interventions that improve survival, quality of life (fatigue, life participation, cognition) and reduce treatment complications (e.g. vascular access, technique failure, graft rejection/loss).
- [Kidney Bite Sized Videos](https://beatckd.org/for-patients-caregivers/kidney-bites/kidney-bites-videos/) - https://youtu.be/iAgbbKs68RM Video: Five questions with Stephen Cornish from Kidney Health Australia. Video: Five questions with Kelly Lambert, Dietitian - University of Wollongong. Video: Five questions with Tracey Drinkwater - The Kidney Society of NZ.
- [Streams](https://beatckd.org/about-us/portfolios/) - Training We will develop of an educational pathway to prepare patients and researchers to work collaboratively in all phases of research, and to ensure we have an effective and efficient foundation on which to build towards the broader goals of the CRE. Our goal is to shape the next generation of research leaders, together with
- [About](https://beatckd.org/about-us/) - Better Evidence and Translation – Chronic Kidney Disease (BEAT-CKD) began as a collaborative research network aiming to improve the lives of people living with chronic kidney disease. Our aim is to generate high-quality research evidence to help patients, health professionals, and policy makers make informed decisions about healthcare. BEAT-CKD was initially established with funding from
- [Featured Research](https://beatckd.org/research/featured-research-new-test-page/) - [oxilab_flip_box id="15"] The intravenous fluid saline, or sodium chloride, has been used in patients during and after kidney transplantation for many years. Plasma-Lyte is an alternative ‘balanced crystalloid’ fluid containing a mixture of salts and water that is more like human plasma and may improve kidney function. In the BEST-Fluids trial, we studied whether giving
- [For Patients/Caregivers](https://beatckd.org/for-patients-caregivers/) - What can I contribute to research? Many health care professionals and researchers are experts in treatments and systems but don’t know what it is like to live with or care for a person with chronic kidney disease. You have knowledge and insight from being a patient or carer that researchers don’t. The knowledge you have
- [Expand your audience!](https://beatckd.org/governance-structure-2/expand-your-audience/) - Please complete this form if you would like the BEAT-CKD communications team to promote your Kidney health or research-related events, trials, research, seminars, or workshops on your behalf, and help expand your reach through our network.
- [Theme 3: Self-management and Lifestyle](https://beatckd.org/theme-3-lifestyle-and-empowerment/) - Theme Synopsis Lifestyle and self-management interventions are considered top priorities by patients in all stages of chronic kidney disease. Changing diet and exercise could have substantial health and cost benefits, and yet these types of interventions are addressed in less than 1% of trials in chronic kidney disease. In CKD, controlling the intake of certain
- [Theme 1: Partnership, Priorities and Preferences](https://beatckd.org/our-featured-research/theme-1-partnership-priorities-and-references/) - Theme Synopsis There is widespread recognition that research will have greater impact if it arises from partnership between patients and researchers. Patient involvement is increasingly required by policy makers, regulators, funders and journals to improve the relevance and impact of research. Despite this growing interest, a major challenge remains that patients, researchers and health professionals
- [BEAT CKD YouTube Channel](https://beatckd.org/youtube-channel/) - https://www.youtube.com/watch?v=wHhOhtXh_SQ&t=41s
- [Our Research](https://beatckd.org/our-featured-research/)
- [Publications 2023](https://beatckd.org/publications/publications-2023/) - Gately, Ryan, Milanzi, Elasma, Lim, Wai, Teixeira-Pinto, Armando, Clayton, Phil, Isbel, Nicole, Johnson, David W., Hawley, Carmel, Campbell, Scott and Wong, Germaine (2023). Incidence, risk factors, and outcomes of kidney transplant recipients with BK polyomavirus-associated nephropathy. Kidney International Reports, 8 (3), 531-543. https://doi.org/10.1016/j.ekir.2022.12.020 Guha, Chandana, Khalid, Rabia, van Zwieten, Anita, Francis, Anna, Hawley, Carmel M.,
- [Theme 2: Prevention](https://beatckd.org/our-featured-research/theme-2-prevention/) - Theme Synopsis Prevention of CKD has been consistently identified as the top research priority by patients, caregivers, researchers and healthcare organisations. Patients with CKD are at an increased risk of developing cardiovascular disease and cancer, yet evidence to support treatments that prevent CKD itself, or prevent patients from developing further life-threatening comorbidities, remains limited. BEAT-CKD
- [Publications 2022](https://beatckd.org/publications-2022/) - Collins, Michael G., Fahim, Magid A., Pascoe, Elaine M., Hawley, Carmel M., Johnson, David W., Varghese, Julie, Hickey, Laura E., Clayton, Philip A., Gill, John S., Dansie, Kathryn B., McConnochie, Rachael C., Vergara, Liza A., Kiriwandeniya, Charani, Reidlinger, Donna, Mount, Peter F., Weinberg, Laurence, McArthur, Colin J., Toby Coates, P., Endre, Zoltan H., Goodman, David,
- [Patient Advisory Group](https://beatckd.org/people/patient-advisory-group/)
- [Courses](https://beatckd.org/courses-overview/) - Start Course Continue Visit Results
- [Governance Structure](https://beatckd.org/governance-structure/)
- [Resources](https://beatckd.org/for-patients-caregivers/resources/) - Consumer and community engagement [oxilab_flip_box id="4"] Information about research and being involved [oxilab_flip_box id="7"] Applications and other helpful tools [oxilab_flip_box id="9"]
- [2019 Forum](https://beatckd.org/forum2019/) - BEAT-CKD Annual Research Forum and Workshops, 12-13 August 2019 The annual research forum/workshops are for patients, caregivers, clinicians, and researchers with an interest in conducting and implementing research to improve outcomes for people with chronic kidney disease. This open forum provides a unique opportunity to hear and discuss innovative methods, high-priority research projects, and to
- [](https://beatckd.org/newsletter/interview-with-david-tunnicliffe-a-researchers-point-of-view/) - What is your field of research? I work in the area of developing and implementing clinical practice guidelines on the care of people with chronic kidney disease. In this role, I search and collate research evidence and help to support guideline groups in developing recommendation for care based on the current research. I am also
- [CARI](https://beatckd.org/our-network/cari/) - CARI Guidelines aims to improve the quality of care and outcomes for patients with kidney disease in Australia & New Zealand. They develop and implement clinical practice guidelines based on the best available evidence. Guidelines have been produced on a wide range of topics such as blood pressure targets and lifestyle modifications to prevent disease
- [ANZDATA](https://beatckd.org/our-network/anzdata/) - The Australia and New Zealand Dialysis and Transplant Registry (ANZDATA) collects clinical data from dialysis and transplant services all over Australia and New Zealand and uses it to answer a wide range of questions relating to outcomes for people with end stage kidney failure. Routine patient infomation such as the type of kidney disease, treatment,
- [Cochrane Kidney and Transplant](https://beatckd.org/our-network/cochrane-kidney-and-transplant/) - Cochrane Kidney and Transplant (CKT) is an independent, not-for-profit organisation dedicated to providing up-to-date, accurate information about healthcare. Cochrane Kidney and Transplant produces systematic reviews. These reviews gather all the available evidence for a specific healthcare topic published in medical journals. Rigorous methods are used to ensure that the evidence included in the review is
- [Song](https://beatckd.org/our-network/song/) - The Standardised Outcomes in Nephrology (SONG) initiative aims to establish a set of core outcomes and outcome measures for clinical trials and other forms of research across the spectrum of kidney disease. Core outcome sets are a group of agreed-upon outcomes that should be measured and reported in all clinical trials in specific areas of
- [AKTN](https://beatckd.org/our-network/anzdata-2/) - The Australasian Kidney Trials Network (AKTN) operates under the Centre for Health Services Research at the University of Queensland’s Faculty of Medicine. It is a not-for-profit research organisation made up of doctors, nurses, researchers, dieticians, scientists and other health professionals who conduct clinical trials in kidney disease. Clinical trials investigate new medical procedures, treatments and
- [Our Network](https://beatckd.org/our-network/) - Click to find more information.
- [Theme 5: Equity and Access](https://beatckd.org/theme-5-equity-and-access/) - Theme Synopsis Health equity means that every person in a given society has the same chance of living the healthiest life they can. In Australia, although the standards of care and resources available for people living with chronic kidney disease are generally high, they can vary significantly between regions and populations. Geography, age, gender and
- [Operations Committee](https://beatckd.org/people/operations-committee/)
- [Patient Engagement Officers](https://beatckd.org/people/patient-engagement-officers-2/)
- [For Researchers](https://beatckd.org/for-researchers/) - Coming Soon
- [People](https://beatckd.org/people/) - The BEAT-CKD Management Committee provides strategic direction andoversees the entire research program including budget allocation. The Operations Committee is responsible for the overall coordination and development of the BEAT-CKD program. BEAT-CKD involves a wide network of researchers, including post-graduate students and post-doctoral fellows, who share a common goal - to reduce the burden caused by
- [Partnership](https://beatckd.org/partnership/) - The role of the Partnership portfolio is to support stakeholder engagement and knowledge exchange. It will help the CRE develop national and international collaborations with leading organisations in the field of kidney health to ensure that efficient and effective pathways are in place to implement the patient-prioritised outputs of the CRE. Our body of work
- [Research](https://beatckd.org/research/) - Our goals are to develop innovative, patient-centred research projects, which address patient-prioritised evidence gaps and apply best-practice patient-partnership. We aim to support patient engagement throughout the BEAT-CKD network to ensure that new and existing research projects align with these core research goals. BEAT-CKD researchers will work collaboratively with patients and clinicians to generate patient-prioritised research
- [Training](https://beatckd.org/training/) - We will develop of an educational pathway to prepare patients and researchers to work collaboratively in all phases of research, and to ensure we have an effective and efficient foundation on which to build towards the broader goals of the CRE. Our goal is to shape the next generation of research leaders, together with a
- [Does Metformin slow the progression of Autosomal Dominant Polycystic Kidney Disease?](https://beatckd.org/our-featured-research/theme-2-prevention/does-metformin-slow-the-progression-of-autosomal-dominant-polycystic-kidney-disease/) - Autosomal dominant polycystic kidney disease (ADPKD) is the 4th most common cause of kidney failure in Australia. Patients with ADPKD experience a high symptom burden including pain, anxiety, depression and poor quality of life, and yet there are very limited therapeutic options for slowing disease progression. Metformin is a safe, economical and readily-available drug which
- [Management Committee](https://beatckd.org/people/management-committee/)
- [The Mobile Exercise App for Fatigue In Patients on Dialysis Trial](https://beatckd.org/theme-3-lifestyle-and-empowerment/the-mobile-exercise-app-for-fatigue-in-patients-on-dialysis-trial/) - Fatigue is one of the most common and debilitating symptoms of haemodialysis, and has been consistently identified by patients as a top research priority. Some data suggest that exercise may improve fatigue, but the evidence is limited and has focussed on exercise programs that are delivered during dialysis hours. Patients, however, prefer programs that are
- [Do patient-navigators help improve outcomes for children with chronic kidney disease?](https://beatckd.org/theme-5-equity-and-access/do-patient-navigators-help-improve-outcomes-for-children-with-chronic-kidney-disease/) - Children from low socioeconomic backgrounds (SES) with chronic kidney disease experience worse health outcomes compared to those with higher SES. Patient navigators help patients and thier families access care by providing coordination services and advocating on thier behalf. NAVKIDS2 will assess whether the use of patient navigators improves outcomes such as health, quality of life
- [Projects](https://beatckd.org/projects-2/)
- [For Researchers](https://beatckd.org/governance-structure-2/) - Lorem ipsum dolor sit amet, consectetur adipiscing elit. Proin consequat metus ut placerat accumsan. Pellentesque cursus libero placerat mauris egestas, quis bibendum erat efficitur. Aliquam in felis felis. Curabitur in arcu tempor nisi tincidunt aliquet. Vestibulum nec ligula ultricies, gravida tellus sed, lobortis nulla. Aliquam a sollicitudin dolor. Ut mattis aliquet hendrerit. Sed risus erat,
- [Consumer Advisory Board](https://beatckd.org/about-us/consumeradvisoryboard/) - The BEAT-CKD Consumer Advisory Board consists of 40 people from across Australia with varied experiences of kidney disease, including individuals with chronic kidney disease, receiving haemodialysis, peritoneal dialysis, transplant recipients, and carers/family members (including kidney donors). The primary purpose of this board is to engage consumers in the planning, conducting, disseminating, and implementation of research
- [Publications 2018](https://beatckd.org/publications-2018/) - Lim WH, Johnson DW, Hawley CM, Pascoe E, Wong G. Impact of Diabetes Mellitus on the Association of Vascular Disease Before Transplantation With Long-term Transplant and Patient Outcomes After Kidney Transplantation: A Population Cohort Study. American journal of kidney diseases : the official journal of the National Kidney Foundation. 2018;71(1):102-11. (DOI 10.1053/j.ajkd.2017.08.018) Viecelli AK, Tong A, O'Lone
- [Publications 2017](https://beatckd.org/publications-2017/) - January 2017 Boudville N, Cho Y, Equinox KL, Figueiredo AE, Hawley CM, Howard K, Johnson DW, Jose M, Lee A, Maley M, Maley J, Pascoe EM, Steiner GZ, Tomlins M, Voss D, Chow J. Teaching peritoneal dialysis in Australia: An opportunity for improvement. Nephrology 2017.(DOI: 10.1111/nep.12992) Campbell DJ, Mudge DW, Gallagher MP, Lim WH, Dwarakanathan R, Saweirs
- [Publications 2016](https://beatckd.org/publications-2016/) - January 2016 Baan CC, Bromberg JS, Chapman JR, Geissler EK, Pomfret EA, Tullius SG. Transplantation Reaches 100th Volume. Transplantation. 2016;100(1):1. Jan. DOI: 10.1097/01.TP.0000475956.36941.e6 Chan S, Fahim MA, Macdonald GA, Johnson DW. Treatment of hepatitis B in patients with chronic kidney disease. In: Hepatitis B treatment, Avid Science, Berlin, Germany, 2016. Cho Y, Johnson DW, Vesey DA, Hawley CM, Pascoe
- [PG/ECR Network](https://beatckd.org/people/pgecrnetwork/) - BEAT-CKD Postgraduate and Early Career Researcher (ECR Network) The aim of the BEAT-CKD PG/ECR network is to provide postgraduate and early career researchers access to support in multidisciplinary research methods and opportunities for knowledge exchange, networking and collaboration. Members include postgraduate students, early career researchers, and supervisors (BEAT-CKD investigators). We have month video conference sessions
- [M-FIT](https://beatckd.org/projects/mfit/) - Mobile exercise App to improve fatigue in patients on dialysis: an adaptive trial (M-FIT) We thank all the patients and family members who attended the M-FIT workshop on Saturday 24th November 2018 in Sydney. The discussions were rich with invaluable insights and ideas about exercise to improve fatigue in people on dialysis. The discussions will be used
- [PAVE-CKD](https://beatckd.org/projects/paveckd/) - PAVE-CKD Patient navigator program for patients with early chronic kidney disease Have you ever felt you needed more information and support to help manage chronic kidney disease? You are invited to the PAVE-CKD workshop to discuss the needs of patients in managing chronic kidney disease. Your opinion and suggestions will inform a study (clinical trial) of
- [Opportunities](https://beatckd.org/people/opportunities/) - Expression of Interest: Research officer position / PhD scholarship in patient-centred outcomes research in chronic disease We are seeking expressions of interest for a research officer and/or PhD Candidate to contribute to patient-centred outcomes research projects in chronic disease, primarily chronic kidney disease and cardiovascular disease. The projects aim to: identify stakeholder values, priorities and
- [Publications 2020](https://beatckd.org/publications-2020/) - Brown EA, Blake PG, Boudville N, Davies S, de Arteaga J, Dong J, et al. International Society for Peritoneal Dialysis practice recommendations: Prescribing high-quality goal-directed peritoneal dialysis. Perit Dial Int. 2020;40(3):244-53. Brown EA, Boudville N, Finkelstein F, Johnson D, Liew A, Moraes T, et al. Reply to letter from A Karkar. Perit Dial Int. 2020:896860820920144.
- [INCH-HD](https://beatckd.org/inch-hd/) - INCH-HD workshop Are you interested in having a say about how to do dialysis in a safe and patient-centred way? We invite people receiving haemodialysis (or were on haemodialysis in the past five years) and people who are about to start haemodialysis to take part in a 90 minute online workshop. The purpose of the
- [2020 Forum](https://beatckd.org/2020-forum/) - LEARN MORE AND REGISTER 2020 Annual Research Forum This free two-day digital forum will cover learnings and highlights from the BEAT-CKD cross-pillar collaborations, changing the world from a consumer perspective, consumer engagement and involvement across the research-translation cycle, broad-range of projects arising from the BEAT-CKD program presented by emerging leaders, and the future of BEAT-CKD
- [Publications 2019](https://beatckd.org/publications-2019/) - Au EH, Chapman JR, Craig JC, Lim WH, Teixeira-Pinto A, Ullah S, et al. Overall and Site-Specific Cancer Mortality in Patients on Dialysis and after Kidney Transplant. J Am Soc Nephrol. 2019. Bello A, Levin A, Lunney M, Jha V. Current status of end-stage kidney disease care in world countries and regions- an international survey.
- [Projects](https://beatckd.org/projects/) - BEAT-CKD research projects AKTN: Clinical trials in nephrology Link: www.aktn.org.au Contact: Donna Reidlinger, M +61 411 398 723, E d.reidlinger@uq.edu.au The Australia and New Zealand Dialysis and Transplant Registry (ANZDATA) collects and reports the incidence, prevalence and outcome of dialysis treatment and kidney transplantation for patients with end-stage kidney disease across Australia and New Zealand. ANZDATA is conducting
- [Live Stream: Patient and Carer Forum - 2019 ISN World congress of Nephrology](https://beatckd.org/live-stream-patient-and-carer-forum-2019-isn-world-congress-of-nephrology/) - Live-streaming will commence on the screen below at 2:30pm (VIC time) on Sunday April 14th If we didn't get a chance to answer your questions during the session please send them through to kidneyhelpline@kidney.org.auYou may also like to visit Kidney Health Australia's website: https://kidney.org.au Click to view the session program After the session we would
- [ANZSN 2018 Patient Session Live Streams](https://beatckd.org/events/anzsn2018patientsessionlivestreams/) - ANZSN 2018 Patient Sessions LIVE STREAMS Join the ANZSN Patient Session via live stream by clicking on the video above!
- [Community](https://beatckd.org/community/) - [forum]
- [ANZSN 2018 Patient Sessions](https://beatckd.org/anzsn-2018-patient-sessions/) - 54th Australian and New Zealand Society of Nephrology (ANZSN) Annual Scientific Meeting The ANZSN Annual Scientific Meeting will be held at the International Convention Centre, Sydney, from 8 – 12 September 2018. There are consumer sessions at this year’s meeting for patients and family members/caregivers. The sessions will cover a range of topics, developed and chosen by the BEAT-CKD Consumer
- [CancerScreening](https://beatckd.org/cancerscreening/) - Cancer screening in patients with kidney disease – what information is important to you? Tell us what information is important to you when deciding to screen for cancer! We are conducting a short survey (10 questions) to understand your preferences for information on cancer screening in patients with chronic kidney disease. This will help us to
- [PG ECR Resources](https://beatckd.org/pg-ecr-resources/) - Grants NHMRC Funding calendar: https://www.nhmrc.gov.au/grants-funding/2018-nhmrc-funding-calendar Clinical Trials and Cohort Studies Grant 2019 Guidelines v1 Ideas Grants 2019 Guidelines v1.0 Investigator Grants 2019 Guidelines v1.0 Synergy Grants 2019 Guidelines v1.0
- [2018 Research Forum](https://beatckd.org/2018-forum/) - BEAT-CKD Annual Research Forum and Workshops, 23rd to 25th July 2018 The open research forum and workshops for chronic kidney disease will be held at: Translational Research Institute (TRI), 37 Kent Street, Woolloongabba, Brisbane, Queensland. 23 July and 24 July: Research Forum (Cost: free) 25 July: Research Workshops - 4 concurrent streams (Cost: $100 non-students, $50
- [BEAT-CKD PG/ECR Network](https://beatckd.org/beat-ckd-pgecr-network/) - BEAT-CKD Postgraduate and ECR Network The BEAT-CKD Postgraduate and Early Career Researcher (ECR) Network aims provide access to support in multidisciplinary research methods and opportunities for knowledge exchange, networking and collaboration. A facilitated monthly Postgraduate/ECR videoconference session focussed on a specific methods (e.g. designing a trial protocol, registry trials) or topic (e.g. organ allocation) will
- [Workshop Materials 280717](https://beatckd.org/workshop-materials-280717/) - Crash course on conducting and publishing qualitative health research 1. Program BEAT-CKD_QualWorkshop_Program_20170728 2. Slides Workshop slides pdf 3. Session 4a - transcripts (pre-reading) Session_4_4a_PregnancyInterviewTranscript 4. Session 5a - Tonkin-Crine 2015 et al Session_5_5a_TonkinCrine2015 Consolidated criteria for reporting qualitative health research COREQ
- [Test TLP Team](https://beatckd.org/test-tlp-team/) - [tlpteam col="4" member="8" orderby="title" order="ASC" layout="1"]
- [Sample Page](https://beatckd.org/sample-page/) - This is an example page. It's different from a blog post because it will stay in one place and will show up in your site navigation (in most themes). Most people start with an About page that introduces them to potential site visitors. It might say something like this: Hi there! I'm a bike messenger

## Services

- [Kidney Bites](https://beatckd.org/services/training-2/) - Kidney Bites is an online patient and caregiver community where you can meet and connect with others who have a lived experience of kidney disease.
- [End of Year Workshop 2024](https://beatckd.org/services/partnership/) - Consumers, researchers, and health professionals are invited to attend our BEAT-CKD end of year forum featuring experts in in the field of kidney disease.
- [Seminar Series](https://beatckd.org/services/research/) - Our Seminar Series offer patients, caregivers, clinicians, and researchers access to support in diverse research methods and opportunities for sharing knowledge, networking, and collaboration.
- [SONG](https://beatckd.org/services/song/)
- [PREVENT-ADPKD](https://beatckd.org/services/prevent-adpkd/) - Randomised controlled trial of increased water intake to prevent kidney failure due to ADPKD
- [ANZDATA: organ allocation](https://beatckd.org/services/anzdata-organ-allocation/)
- [Implementation](https://beatckd.org/services/implementation-2/) - Translating research findings into routine clinical care and policy through wide stakeholder engagement
- [Evaluation](https://beatckd.org/services/evaluation-2/) - Evaluating interventions to provide robust evidence for healthcare decisions
- [Identification](https://beatckd.org/services/identification-2/) - Identifying promising new interventions to improve patient outcomes

## Courses

- [Researcher training](https://beatckd.org/course/researcher-training/) - Welcome to our researcher training course. This course aims to equip researchers with the knowledge, resources, and skills required to work effectively with patients and caregiver high impact.
- [Consumer training](https://beatckd.org/course/consumer-training/) - Welcome to our consumer training course. This course aims to equip patients and caregivers with the knowledge, resources, and skills required to work together with researchers effectively and for high impact.

## Lessons

- [4. Will it make a difference?](https://beatckd.org/lesson/4-will-it-make-a-difference/) - Consumer involvement makes sure research is appropriate and thoughtful. It could involve: Developing new ideas Making sure research is prioritised Be apart of funding applications Make sure researchers use funding appropriately Make sure the research design is feasible Inspire and motivate researchers Identify how to support other consumers taking part in the study Help collect
- [1. Module 6 learning outcomes](https://beatckd.org/lesson/1-module-6-learning-outcomes/) - Learning outcomes for this module: In this module we will define what consumer involvement in research is and why it is important. 1. To learn what research is. 2. To learn who is a consumer. 3. To learn what consumer involvement is in research. 4. To understand why consumer involvement is important. 5. To understand
- [1. Module 1 learning outcomes](https://beatckd.org/lesson/1-module-1-learning-outcomes/) - Learning outcomes for this module: In this module we will define what consumer involvement in research is and why it is important. 1. To learn what research is. 2. To learn who is a consumer. 3. To learn what consumer involvement is in research. 4. To understand why consumer involvement is
- [5. What skills and qualifications do consumers need?](https://beatckd.org/lesson/5-what-skills-and-qualifications-do-consumers-need-2/) - Consumers do not need to have any qualifications, skills or pre-existing knowledge to be a consumer in research. There are many types of research and topics. There will likely be something you are interested in. Some projects may be more relevant to different consumers and their interest and experience. Existing skills from previous work, current
- [3. What can consumers contribute to research?](https://beatckd.org/lesson/3-what-can-consumers-contribute-to-research/) - Health professionals know a lot about interventions, treatment and research. However, it’s not often a researcher has lived experience with a health condition. Your lived experience will help fill the gaps in knowledge and research. Research and trials exist to benefit consumers. Consumer involvement in research includes consumer interest. Share your thoughts and opinions based
- [2. Why should consumers become involved in research?](https://beatckd.org/lesson/2-why-should-consumers-become-involved-in-research/) - It is important for research to address topics that are important to patients. For example, the challenges patients may encounter and impact in daily life. Offers an opportunity to understand the disease better. To form relationships with researchers. Get to know other patients and families. Build confidence and gain skills. Find an opportunity to use
- [1. Module 13 learning outcomes](https://beatckd.org/lesson/1-module-13-learning-outcomes-2/) - Learning outcomes for this module: In this module we will cover common questions about becoming involved in research. 1. To learn how to get involved in research. 2. To understand why consumers should be involved in research. 3. To understand how consumers can contribute to research. 4. To understand what skills are needed to
- [9. HyperRESEARCH](https://beatckd.org/lesson/9-hyperresearch-2/) - HyperResearch is a program used exclusively for qualitative analysis. HyperRESEARCH tutorial
- [8. R Studio](https://beatckd.org/lesson/8-r-studio-2/) - R is a program used for statistical analysis and visual/graphical presentation of data. The basics of R-Studio
- [7. Covidence](https://beatckd.org/lesson/7-covidence-2/) - Covidence is a platform that makes conducting systematic reviews quicker and easier. Covidence tutorials
- [6. Endnote](https://beatckd.org/lesson/6-endnote-2/) - Endnote is a platform that allows you to store references and then insert them into a document. You are also able to conduct systematic reviews through endnote by reviewing and categorising references. Endnote tutorials
- [5. Microsoft Excel](https://beatckd.org/lesson/5-microsoft-excel-2/) - Excel is a program that allows you to organise, format and calculate data in a spreadsheet. 20 minute Microsoft Excel tutorial
- [3. Microsoft Word](https://beatckd.org/lesson/3-microsoft-word-2/) - Microsoft Word is a program that allows you to write and organise documents. It has many functions including editing, revising and formatting tools. You can also work with others online in the same document. 30 minute Microsoft Word tutorial 
- [4. PowerPoint](https://beatckd.org/lesson/4-powerpoint-2/) - PowerPoint is a program that allows you to present ideas. It offers creative ways to communicate a topic. For example, adding text, images, shapes and videos. 25 minute Microsoft PowerPoint tutorial
- [3. Microsoft Word](https://beatckd.org/lesson/3-microsoft-word/) - Microsoft Word is a program that allows you to write and organise documents. It has many functions including editing, revising and formatting tools. You can also work with others online in the same document. 30 minute Microsoft Word tutorial 
- [2. Zoom](https://beatckd.org/lesson/2-zoom-2/) - Zoom is a program that allows people to connect online through video, audio and chat functions. It uses a device such as a computer, laptop, phone or iPad/tablet as well as an internet connection. Other features include the chat function, reactions, subtitles, and sharing screen. Read more about Zoom here: Step by step guide to
- [1. Module 15 learning outcomes](https://beatckd.org/lesson/1-module-15-learning-outcomes/) - Learning outcomes for this module: In this module we will learn about the different programs that are commonly used in research. 1. To be confident using different programs including HyperRESEARCH, R Studio, Microsoft Word, Excel, PowerPoint, and Zoom. Estimated completion time: 25 minutes - 2 hours.
- [6. Extra resources](https://beatckd.org/lesson/7-extra-resources-2/) - Further resources: A framework for partnering with consumers at conferences. Access here. Read about consumer perspectives on equal partnership at conference. Access here. Understand different methods to involve consumers here.
- [4. How to involve consumers at your next scientific conference](https://beatckd.org/lesson/5-how-to-involve-consumers-at-your-next-scientific-conference/) - Consumer involvement at conferences helps to emphasis the experiences and needs of the consumer. Consumers can play a role in prioritising the research agenda with consumers actively involved in the pursuit of better outcomes in kidney health. It allows consumers to work alongside researchers with similar interests. Involving consumers as organisers, facilitators and presenters at
- [5. Co-authorship opportunities on research papers](https://beatckd.org/lesson/6-co-authorship-opportunities-on-research-papers/) - Involving consumers in research papers: Identify a key contact or ‘buddy’ in the research group to work with consumers in the writing and submission process. Allow time for meetings between consumer author(s) and ‘buddy’ to discuss a plan and provide assistance for writing content. Offer assistance to help guide consumers’ writing, this may be a
- [3. How to involve consumers in grants](https://beatckd.org/lesson/4-how-to-involve-consumers-in-grants/) - “... consumers and community members add value to health and medical research and have a right and responsibility to do so.” - NHMRC Consider involving consumers in your research project just like you would consider the chosen methodology and as an investment like any other research infrastructure (e.g. Staff, technology). It is important to
- [8. Extra resources](https://beatckd.org/lesson/8-extra-resources-4/) - Extra resources Hear about more consumer involvement stories from the Australia Clinical Trials Alliance Learn more about becoming involved in health and medical research. Read the Clinical trials alliance tool kit. Hear from Susan Brunton about her involvement as a consumer advisor. Watch the video here.
- [7. Examples of consumer involvement making an impact](https://beatckd.org/lesson/7-examples-of-consumer-involvement-making-an-impact-2/) - Examples of consumer involvement making an impact SONG – Standardised Outcomes in Nephrology SONG aims to create core outcomes in chronic kidney disease (CKD). This occurs from the shared priorities of patients, caregivers, and health professionals (including doctors, nurses, researchers, policy makers, and many more relevant stakeholders). Patients have been involved in workshops to
- [6. Hear from other consumers](https://beatckd.org/lesson/6-hear-from-other-consumers-2/) - Hear from Amanda, a kidney transplant recipient and a researcher I am a researcher and consumer. I enjoy being part of research that helps to change practice and outcomes for future treatments. I have the benefit of being involved and seeing new ways to improve care. Being a patient with lived experience is valuable
- [5. What are some of the highlights in involving consumers in research?](https://beatckd.org/lesson/5-what-are-some-of-the-highlights-in-involving-consumers-in-research-2/) - What are some of the highlights in involving consumers in research? From Dr Erandi Hewawasam Seeing them excel in both personal and professional lives. Conducting impactful research that matters to people. Addressing patient priorities. Brings patient perspectives into research. Translate data heavy findings into consumer-friendly outputs. From Dr Karine Manera Listening to the
- [4. Why should consumers be involved in research?](https://beatckd.org/lesson/4-why-should-consumers-be-involved-in-research-2/) - Why should consumers be involved in research? Become a part of a community. Display and share their lived-experience expertise to add value to the research. Make sure research is relevant to community needs. Learn new things, gain new skills and make use of existing skills. Help put research into practice. Create more focused research. Provide
- [3. Why do researchers want to involve consumers in research?](https://beatckd.org/lesson/3-why-do-researchers-want-to-involve-consumers-in-research-2/) - Why do researchers want to involve consumers in research? Hear from Dr Erandi Hewawasam To learn about what patient priorities are. To gain insights into patients’ lived experiences. What worked? What didn’t work? Where could we improve the care? Hear from Dr Karine Manera To ensure that time and resources spent on research will
- [2. Hear from our researchers](https://beatckd.org/lesson/2-hear-from-our-researchers-2/)
- [1. Module 2 learning outcomes](https://beatckd.org/lesson/1-module-2-learning-outcomes-2/) - Module 2: Learning outcomes This module will showcase consumers and researchers want to work with each other. 1. To understand why researchers want to involve consumers in research. 2. To understand why consumers should be involved in research. 3. To learn about the highlights of consumer involvement. 4. To learn of examples of consumers
- [8. Extra resources](https://beatckd.org/lesson/8-extra-resources-3/) - Extra resources Consumer Engagement models: What are the ways for consumers and researchers to work effectively together in order to achieve the desired outcomes. To learn more watch this presentation presented by Anne McKenzie (52 minutes) To learn more about the difference between involvement, engagement and participation watch this video (2 minutes)
- [7. Key terms in kidney research](https://beatckd.org/lesson/7-key-terms-in-kidney-research/)
- [6. Benefits of consumer involvement in research](https://beatckd.org/lesson/6-benefits-of-consumer-involvement-in-research/) - Benefits of consumer involvement in research Benefits for Consumers Improve knowledge about their condition Learn new skills (research, public speaking, technology) Drive research that is relevant and meaningful to them (pick out topics, support plain language summaries) Provide personal perspectives Empower and encourage consumers to have an active role in their health Create
- [5. How are consumers involved in research?](https://beatckd.org/lesson/5-how-are-consumers-involved-in-research-2/) - How are consumers involved in research? Join an advisory board or committee Join a research team Attend meetings or workshops Provide feedback on research ideas Identify research areas or interventions Provide feedback on study design Ensure suitable research methods Read/help write documents Spread the word about recent research findings
- [4. Types of consumer involvement in research  ](https://beatckd.org/lesson/4-types-of-consumer-involvement-in-research/) - Types of consumer involvement in research There are many ways consumers can be take part in research. Consumer engagement refers to ways consumers have contact with the health system, and research. This includes newsletters or information sessions to hear about recent research. Consumer participation in research refers to taking part as a participants in
- [3. Why is consumer involvement in research important?](https://beatckd.org/lesson/3-why-is-consumer-involvement-in-research-important/) - Why is consumer involvement in research important? Consumer involvement is important to make sure research remains relevant and meaningful considering the needs and interest of consumers. This makes sure research is appropriate, acceptable and accessible to all consumers. Consumers are key to sharing research effectively to promote change with lasting impacts.
- [2. Research and consumer involvement](https://beatckd.org/lesson/2-research-and-consumer-involvement/) - What is research? Research involves the study and order of evidence to grow an understanding of a certain topic. Research can create new knowledge, and use existing knowledge to explore new concepts. It aims to fill gaps in our knowledge. This new knowledge helps us to better understand: how things work, why things happen, and
- [1. Module 1 learning outcomes](https://beatckd.org/lesson/learning-outcomes-module-1/) - Learning outcomes for this module: In this module we will define what consumer involvement in research is and why it is important. 1. To learn what research is. 2. To learn who is a consumer. 3. To learn what consumer involvement is in research. 4. To understand why consumer involvement is
- [2. Why patients should be involved in setting priorities?](https://beatckd.org/lesson/2-why-patients-should-be-involved-in-setting-priorities/) - Patients need to be involved in setting research priorities to ensure research addresses the needs and outcomes of importance to patients. It is important to ensure the patient's voice is heard so that research reflects the whole person rather than just the disease. For examples research priority setting partnerships in CKD have expanded the research
- [4. Framework for setting research priorities: REPRISE](https://beatckd.org/lesson/4-framework-for-setting-research-priorities-reprise/) - The reporting guidelines for priority setting of health research (REPRISE) were developed for transparent reporting to ensure reliability and validity. REPRISE includes ten domains and 31 reporting items. The ten domains include: 1. Scope and context 2. Governance and team 3. Framework for priority setting 4. Stakeholders or participants 5. Identification and collection of
- [3. Frameworks for setting research priorities: James Lind Alliance](https://beatckd.org/lesson/3-frameworks-for-setting-research-priorities-james-lind-alliance/) - The UK James Lind Alliance (JLA) brings together patients/caregivers and health professionals/ researchers to form the research agenda. The partnership consists of a steering group, partners, and stakeholders. The JLA process consists of eight steps: 1. Form a steering group which will lead the priority setting partnership 2. Collect research uncertainties via a survey
- [1. Module 5 learning outcomes](https://beatckd.org/lesson/1-module-5-learning-outcomes/) - Learning outcomes for this module: In this module we will look at involving consumers in setting research priorities. 1. To understand why patients should be involved in setting research priorities. 2. To be familiar with frameworks support and guide priority setting e.g. JLA and REPRISE. 3. To be familiar with examples of priority
- [4. Values in consumer involvement](https://beatckd.org/lesson/4-values-in-consumer-involvement/) - Value Definition Support Ensure both consumers and researchers are provided with adequate support including funding, time and resources. For example, debriefing sessions after workshops/meetings; flexible meeting times/formats; responding to requests for help/information in a timely manner; having a point-of-contact for one-on-one support. Engagement Create a patient-centred culture making time for all consumers. Engage early on
- [3. Frameworks for consumer involvement in research](https://beatckd.org/lesson/3-frameworks-for-consumer-involvement-in-research/) - Patients can use their skills and experience to support, provide guidance and assist in the development of research. Frameworks support building confidence and trust with patients. Several organisations have outlined principles and strategies for patient involvement in research. Some examples include the UK Standards for Public Involvement in research and Canada’s Strategy for Patient-Oriented Research
- [2. Strategies for effective consumer involvement](https://beatckd.org/lesson/2-strategies-for-effective-consumer-involvement/) - Engagement and selection Plan and budget for patient/caregiver involvement as early as possible. Clearly define role (level of involvement, stage of research, specific responsibilities), required commitment (time, financial, emotional) and expected impact (directly on a specific project, on the wider kidney community agenda or expected benefits for future generations) with ‘terms of reference’ document. Allow
- [1. Module 4 learning outcomes](https://beatckd.org/lesson/1-module-4-learning-outcomes/) - Learning outcomes for this module: In this module we will look at principles and strategies for consumer involvement. 1. To understand the principles and strategies for effective consumer involvement. 2. To be familiar with frameworks to support and guide consumer involvement in research. 3. To be familiar with important values in consumer involvement in
- [2. Where can consumers be involved?](https://beatckd.org/lesson/2-where-can-consumers-be-involved/) - Stage of research How can consumers become involved? Identifying and prioritising research topics e.g. Deciding what to research Help identify topics based on what consumers feel is important and based off experiences. Make sure the proposal is needed and important. To review the early stages of a project before it gets underway to provide
- [1. Module 3 learning outcomes](https://beatckd.org/lesson/1-module-3-learning-outcomes/) - Learning outcomes for this module: This module will highlight how consumers can be involved in research. 1. To understand where consumers can be involved in research. 2. To understand and be equipped with the skills practically involving consumers in grants. 3. To understand how consumers can be involved in conferences. 4. To understand
- [5. How to share your story appropriately in the context of research](https://beatckd.org/lesson/5-how-to-share-your-story-appropriately-in-the-context-of-research/) - How to share your experience: 1. Know the purpose of sharing your experience. How will this be used? Who is the audience? 2. Make sure you only share what you feel comfortable to. Reflect on what you are sharing. Is it sensitive or emotional information? 3. Make sure the environment is safe and non-judgemental.
- [5. Research grants and review process](https://beatckd.org/lesson/5-research-grants-and-review-process/) - Each grant application goes through a large review process by a panel of experts in the relevant field. Generally, a grant review process involves: 1. An initial assessment (by the general assessor) against the selection criteria. 2. Scores and comments (by the detailed assessor) against the specific assessment criteria. 3. Each application
- [4. Ethics approval](https://beatckd.org/lesson/4-ethics-approval/) - The World Health Organization (WHO) describes ethics as making sure research upholds a strong standard of conduct. It is important to make sure the design, conduct and put into action is respectful and considerate of everyone. It is also important to make sure there is appropriate use of resources, funding, scientific conduct and regulation.
- [8. Dissemination](https://beatckd.org/lesson/8-dissemination/) - Dissemination is about sharing research with those that will benefit from it. When sharing research it needs to be understandable. For example, it is like translating a language. If someone don’t understand or speak a certain language it gets translated into one that you do know. In research we translate jargon and scientific terms into
- [3. The research question](https://beatckd.org/lesson/3-the-research-question/) - Every piece of research starts with a thought and the desire to find something out. It starts with a research question. The research question has key parts following the PICO outline. P for the population. Who are we researching? E.g. paediatrics, females/males, Australians. I for intervention. What treatment or program are we measuring the
- [7. Evaluation](https://beatckd.org/lesson/7-evaluation/) - Evaluation studies are important to work out how well an intervention, policy or practice works. An evaluation plan helps make sure the project does not miss any steps and is good quality. The two main types of evaluations are outcome evaluation and impact evaluation. Outcome evaluations focus on the short- and long-term goals of
- [7. Epidemiology and social epidemiology](https://beatckd.org/lesson/7-epidemiology-and-social-epidemiology/) - Epidemiology is the study of patterns, trends and data about different conditions and illness. It aims to understand how, how often and why conditions happen in population groups. This helps prevent and reduce rates of various conditions. This includes looking at the prevalence and incidence. Prevalence refers to the number of existing cases. Incidence refers
- [5. How to access reliable high-quality research?](https://beatckd.org/lesson/how-and-where-to-access-reliable-high-quality-research/) - You can find journal articles in databases. For example, PubMed, PsycINFO and GoogleScholar. Sometimes they are open access. This means any person to freely access published research through online journals and databases. Searching with key terms helps make the search more efficient. Where to search: It is useful for: Watch out for: Databases Easy to
- [4. How do you know whether research is reliable and high-quality?](https://beatckd.org/lesson/4-how-do-you-know-whether-research-is-reliable-and-high-quality/) - When reading and interpreting research, it is important to make sure the research is from a respected source. Ask the following questions when determining the reliability and quality of a source: Is it suitable for my purpose? Is the author trustworthy? Is the publication well respected? Are the ideas backed up with facts? Is the
- [5. How are consumers involved in research?](https://beatckd.org/lesson/5-how-are-consumers-involved-in-research/) - How are consumers involved in research? Join an advisory board or committee Join a research team Attend meetings or workshops Provide feedback on research ideas Identify research areas or interventions Provide feedback on study design Ensure suitable research methods Read/help write documents Spread the word about recent research findings
- [2. Research and consumer involvement](https://beatckd.org/lesson/research-and-consumer-involvement/) - What is research? Research involves the study and order of evidence to grow an understanding of a certain topic. Research can create new knowledge, and use existing knowledge to explore new concepts. It aims to fill gaps in our knowledge. This new knowledge helps us to better understand: how things work, why things happen, and
- [9. Implementation](https://beatckd.org/lesson/9-implementation/) - Implementing research is about using the research. For example, working in real world situations such as policy and practice. It involves identifying the target group of people and bringing the research to life specifically for them. When evaluating research implementation, ask questions such as: Will the target group of people accept it? Will the target
- [7. Translation: knowledge application](https://beatckd.org/lesson/7-translation-knowledge-application/) - Translating research means to bring the research to life. For example, researchers may find ways to increase life participation for patients receiving haemodialysis. The next step is to take action on this research. Translation focuses on improving the current state as we learn how to make things better. This occurs by considering language, beliefs,
- [6. Selecting outcomes](https://beatckd.org/lesson/6-selecting-outcomes/) - What are outcomes? Outcomes are a result of a project. Many trials measure many outcomes. However, they do not always reflect what is important to a patient. They may be clinical outcomes, which are things like blood pressure, or they may be surrogate outcomes. It is also important to measure patient-reported outcomes (PROs). These are
- [5. Identifying and designing interventions](https://beatckd.org/lesson/5-identifying-and-designing-interventions/) - Why should consumers be involved in creating interventions? Consumers are the people using them. For example, if you are designing your dream home, you would be the best person to get it right. This is because you will be the person that will live there. You will know how functional, practical and possible certain parts
- [4. Setting priorities](https://beatckd.org/lesson/4-setting-priorities/) - Patient involvement in setting research priorities makes sure research addresses what is important to patients. For example, it involves the people that will hopefully benefit from the research. It is important that the person is reflected in research and not just the patient with a certain condition. For example, their ability to participate in life.
- [2. Types of publications in research](https://beatckd.org/lesson/2-types-of-publications-in-research/) - Primary and secondary sources of data Primary sources of data are original materials. They offer first-hand accounts of a topic. This includes original research articles. For example, the results of a research study or clinical trial. Secondary sources are those that discuss, analyse and bring together information from primary sources. These can be scientific reviews.
- [2. The research cycle](https://beatckd.org/lesson/2-the-research-cycle/) - Stage of research What is this? How can consumers become involved? Identifying and prioritising research topics For example, deciding what to research. Helping to guide priorities as a stakeholder (someone whom the research is relevant to). Help identify topics based on what you feel is important and your experiences. Establish a need for the proposal.
- [1. Module 7 learning outcomes](https://beatckd.org/lesson/1-module-7-learning-outcomes/) - Learning outcomes for this module: In this module we will learn about different types of research. 1. To understand the research cycle and different stages involved. 2. To understand how to establish research questions. 3. To understand how and why to set priorities in research. 4. To understand how to identify and
- [7. Administrative skills](https://beatckd.org/lesson/7-administrative-skills/) - Communication Communication is the exchange of information. This happens through speaking, writing and listening. Different forms of media present this information. Project Management Project management plan the project from beginning to end. It includes the scope, time, and budget of a desired goal within a team. Time Management Time management makes sure the project is
- [6. Data storage](https://beatckd.org/lesson/6-data-storage/) - Data storage refers to saving information in a place. Types of data storage include: Cloud storage (like Google Drive, OneDrive) Cloud backup USB flash drive Optical media storage (like CD, DVD) Shared drives allow you to store, search, and access files in a shared location for a team. Files in a shared drive belong
- [5. Conflicts of interest](https://beatckd.org/lesson/5-conflicts-of-interest/) - Conflict of interest (COI) is when a person or organisation has an interest or relationships with someone or an organisation that could clash and influence their decisions in a biased or unfair way. For example, the aim of the project is different to someone's views. Declaring conflict of interest and where the funding came from
- [4. Confidentiality](https://beatckd.org/lesson/4-confidentiality/) - Confidentiality is about making sure sensitive information remains private and only certain people can access it. For example, not leaving private information unattended, only available to certain people, have passwords and dispose of any confidential information appropriately. Patient data is often kept anonymous or de-identified (removing names) within projects. Confidentiality goes both ways, researchers and
- [3. Policy](https://beatckd.org/lesson/3-policy/) - Organisations have policies, such as those related to pay, social media, and communication. A remuneration guideline outlines how to recognised and reward people for their contributions. A social media policy outlines how to use social media appropriately to share, connect, advertise and promote work. A communication policy makes sure information shared within and outside the
- [2. Types of remuneration](https://beatckd.org/lesson/2-types-of-remuneration/) - Remuneration is a way to acknowledge the time, effort and contribution of individuals. It is payment or compensation for a task or job. This may be through non-financial means such as certificates, recognition, invitations to events, publication contributions and gifts. Financial means include money, and gift cards. Other examples include meals or food, parking, transport
- [1. Module 11 learning outcomes](https://beatckd.org/lesson/1-module-11-learning-outcomes/) - Learning outcomes for this module: In this module we will learn about different types of research. 1. To understand the different types of remuneration. 2. To understand different types of polices. 3. To know how to uphold confidentiality in research. 4. To understand conflicts of interest in research. 5. To understand data storage in research.
- [2. Top tips from researchers and consumers for consumers](https://beatckd.org/lesson/2-top-tips-from-researchers-and-consumers-for-consumers/) - At the start it may feel daunting to meet new people and work alongside researchers. Remember your input is valuable. Researchers may also be nervous. We have some tips below that could help you. Go to meetings with the research team. This helps to build relationships and become comfortable with people you will work with.
- [1. Module 10 learning outcomes](https://beatckd.org/lesson/1-module-10-learning-outcomes/) - Learning outcomes for this module: In this module we will cover common questions about becoming involved in research. 1. To learn how to get involved in research. 2. To understand why consumers should be involved in research. 3. To understand how consumers can contribute to research. 4. To understand what skills are needed to
- [5. What skills and qualifications do consumers need?](https://beatckd.org/lesson/5-what-skills-and-qualifications-do-consumers-need/) - You do not need to have any qualifications, skills or pre-existing knowledge to be a consumer in research. The modules will help you gain skills and knowledge to work with researchers. There are many types of research and topics. There will likely be something you are interested in. Some projects may be more relevant
- [3. Why should consumers become involved in research?](https://beatckd.org/lesson/3-why-should-i-become-involved-in-research/) - It is important for research to address topics that are important to patients. For example, the challenges patients may encounter and impact in daily life. Offers an opportunity to understand the disease better. To form relationships with researchers. Get to know other patients and families. Build confidence and gain skills. Find an opportunity to use
- [6. Will it make a difference?](https://beatckd.org/lesson/6-will-it-make-a-difference/) - Yes, absolutely, and researchers want to involve consumers. Consumer involvement makes sure research is appropriate and thoughtful. It could involve: Developing new ideas Making sure we prioritise research Be apart of funding applications Make sure researchers use funding appropriately Make sure the research design is feasible Inspire and motivate researchers Identify how to support
- [7. What will I be doing?](https://beatckd.org/lesson/7-what-will-i-be-doing/) - Researchers will share plans and ideas with you. You experience may will be helpful to: Make sure researchers present research appropriately. For example, the research should be available in different languages. Identify any practical arrangements and extra support to make it easier to take part. Look over information for patients. For example, flyers, information sheets,
- [4. What can consumers contribute to research?](https://beatckd.org/lesson/4-what-can-consumers-contribute-to-research/) - Health professionals know a lot about interventions, treatment and research. However, it’s not often a researcher has lived experience with a health condition. Your lived experience will help fill the gaps in knowledge and research. Research and trials exist to benefit consumers. Consumer involvement in research includes consumer interest. Share your thoughts and opinions based
- [8. What can I expect of the people I will be working with?](https://beatckd.org/lesson/8-what-can-i-expect-of-the-people-i-will-be-working-with/) - There will be information provided to you about the role and project. For example, the responsibilities and expectations Fair and open throughout the project Good relationship. For example, trust and respect Open, clear and regular communication Helpful feedback Access to training and support Practical support to facilitate involvement. For example: Scheduling at times and days
- [4. How to deliver a presentation: public speaking](https://beatckd.org/lesson/4-how-to-deliver-a-presentation-public-speaking/) - Tips for public speaking: Be confident. You are the expert. Practice! Start with some long, deep breaths. Then make sure you are comfortable (sitting or standing). When practicing pretend there is an audience in front of you. The more you practice, the easier it will be and more familiar you will be with the content.
- [3. How to deliver a presentation: presentation slides](https://beatckd.org/lesson/3-how-to-deliver-a-presentation-presentation-slides/) - Simplicity is key when creating a PowerPoint presentation. Busy slides can be hard to read and follow for your audience. Some tips include: Use high-quality photographs and images to make the presentation appealing and easy to follow. If you gave presentation slide, make them interesting. For example, use infographics, animations, charts and photos. This can
- [2. Hear from other consumers and researchers about their experience](https://beatckd.org/lesson/2-hear-from-other-consumers-and-researchers-about-their-experience/) - Video coming soon!
- [1. Module 12 learning outcomes](https://beatckd.org/lesson/1-module-12-learning-outcomes/) - Learning outcomes for this module: In this module we will communication and presentation skills. 1. To understand consumer and researcher perspective. 2. To understand how to frame and deliver research presentations so that you can communicate your messages in the best manner possible. 3. To be comfortable, confident and prepared to present to an audience.
- [9. HyperRESEARCH](https://beatckd.org/lesson/9-hyperresearch/) - HyperResearch is a program used exclusively for qualitative analysis. HyperRESEARCH tutorial
- [8. R Studio](https://beatckd.org/lesson/8-r-studio/) - R is a program used for statistical analysis and visual/graphical presentation of data. The basics of R-Studio
- [7. Covidence](https://beatckd.org/lesson/7-covidence/) - Covidence is a platform that makes conducting systematic reviews quicker and easier. Covidence tutorials
- [6. Endnote](https://beatckd.org/lesson/6-endnote/) - Endnote is a platform that allows you to store references and then insert them into a document. You are also able to conduct systematic reviews through endnote by reviewing and categorising references. Endnote tutorials
- [5. Microsoft Excel](https://beatckd.org/lesson/5-microsoft-excel/) - Excel is a program that allows you to organise, format and calculate data in a spreadsheet. 20 minute Microsoft Excel tutorial
- [4. PowerPoint](https://beatckd.org/lesson/4-powerpoint/) - PowerPoint is a program that allows you to present ideas. It offers creative ways to communicate a topic. For example, adding text, images, shapes and videos. 25 minute Microsoft PowerPoint tutorial
- [2. Zoom](https://beatckd.org/lesson/2-zoom/) - Zoom is a program that allows people to connect online through video, audio and chat functions. It uses a device such as a computer, laptop, phone or iPad/tablet as well as an internet connection. Other features include the chat function, reactions, subtitles, and sharing screen. Read more about Zoom here: Step by step guide to
- [1. Module 13 learning outcomes](https://beatckd.org/lesson/1-module-13-learning-outcomes/) - Learning outcomes for this module: In this module we will learn about the different programs that are commonly used in research. 1. To be confident using different programs including Microsoft Word, Excel, PowerPoint, and Zoom. Estimated completion time: 25 minutes - 2 hours.
- [3. Applying for funding](https://beatckd.org/lesson/3-applying-for-funding/) - 1. Identify Funding Sources: Researchers need to find funding sources such as government agencies, private foundations, and industry partners. Some examples of grant sources include: The National Health and Medical Research Council (NHMRC) Medical Research Future Fund (MRFF) Australian Research Council (ARC) Universities Organisations Foundations 2. Read Guidelines: Each funding source has specific guidelines
- [2. Research grants and types of grants](https://beatckd.org/lesson/2-research-grants-and-types-of-grants/) - Research grants are funds given by institutions or organizations to support certain research projects. They target certain topics and are subject to conditions such as meeting the criteria, and reporting throughout. There are several types of grants, including: Individual Grants: Given to a single researcher to support their independent research. Collaborative Grants: Given to
- [1. Module 9 learning outcomes](https://beatckd.org/lesson/1-module-9-learning-outcomes/) - Learning outcomes for this module: In this module we will learn about research funding. 1. To understand what research grants are and the different types of grants. 2. To understand how researchers apply for funding. 3. To understand the role and process of ethics. 4. To understand the review process for research grants. Estimated
- [4. Tips for consumers at conferences](https://beatckd.org/lesson/4-tips-for-consumers-at-conferences/) - Don’t worry about feeling nervous to ask questions. Feel free to ask questions, think of it as a learning experience. Don’t be afraid to ask questions, the patient perspective is often missing so it is a good opportunity to share. Researchers also feel nervous and get worried that they might have missed something already mentioned.
- [3. How can consumers become involved in conferences and workshops?](https://beatckd.org/lesson/3-how-can-consumers-become-involved-in-conferences-and-workshops/) - Sometimes consumers present with researchers, be on a panel, or co-chair sessions. Often conferences will provide sessions and activities to become involved. For example, the Australian and New Zealand Society of Nephrology (ANZSN) Annual Scientific Meeting holds a Consumer Day. It is for to patients and caregivers with presentations of their interest. there are often
- [2. Benefit of consumers being involved at conferences and workshops](https://beatckd.org/lesson/2-benefit-of-consumers-being-involved-at-conferences-and-workshops/) - Opportunity to share experiences and needs with researchers and health professionals. Opportunity to connect with researchers and health professionals. It creates a shared approach to a specific issue. Bring together people from diverse groups with shared values and interests. Opportunity to meet other consumers.
- [1. Module 8 learning outcomes](https://beatckd.org/lesson/1-module-8-learning-outcomes/) - Learning outcomes for this module: In this module we will learn about participating in conferences and workshops. 1. To understand the benefits of consumers at conferences and workshops. 2. To understand how consumers can become involved in conferences and workshops. 3. To learn about consumer experiences at conferences and workshops. Estimated completion time: 20
- [6. Health economics](https://beatckd.org/lesson/6-health-economics/) - Health economics is a type of economics. It aims to understand health systems, behaviours and results. Economic evaluation is a way to use evidence to compare the costs, effectiveness, and benefits of different choices. It helps decide how to use resources and funds in the best way. This helps improve care for patients and their
- [5. Biostatistics](https://beatckd.org/lesson/5-biostatistics/) - Biostatistics involves the collection, analysis, interpretation and reporting of data related to medicine and public health. It plays an important role in determining and assessing risk factors for disease, and testing new treatments. For example, survival analysis is a statistical model of time-to-outcome or time-to-event data. For example, if we are looking at the effect
- [4. Clinical trials](https://beatckd.org/lesson/4-clinical-trials/) - Clinical trials allow researchers to test new treatments or interventions that may prevent, identify, diagnose, treat or manage conditions. Clinical trials look at the results of the new intervention, side effects and any possible changes. The new intervention or treatment and the existing are compared. Clinical trials can study a range of areas including:
- [3. Data linkage](https://beatckd.org/lesson/3-data-linkage/) - Data linkage involves the combines information from more than one source, about the same person, place, family or event. This helps to create a detailed dataset, to help answer research questions. A unique identifying number is assigned to each person on a dataset which links to all records of the person.
- [2. Data registries](https://beatckd.org/lesson/2-data-registries/) - Data registries collect, take care of, hold information. They make sure data is consistent and good quality. Surveys and epidemiological research reports use this data. Health services, such as hospitals and dialysis units, can add patient data to the Registry via forms and surveys. The registry records data on outcomes and treatment of kidney failure.
- [1. Module 6 learning outcomes](https://beatckd.org/lesson/6383/) - Learning outcomes for this module: In this module we will continue from module 5 learning about different types of research. 1. To understand the role of data registries. 2. To understand the role of data linkage. 3. To understand the role of biostatistics. 4. To understand the role of health economics. 5. To understand the
- [6. Clinical guidelines](https://beatckd.org/lesson/6-clinical-guidelines/) - Clinical guidelines are research informed recommendations aiming to help health professionals provide best care through evidence informed decisions.
- [5. Evidence Synthesis and systematic reviews](https://beatckd.org/lesson/5-evidence-synthesis-and-systematic-reviews/) - Evidence synthesis refers to researchers gathering all relevant research on a certain research question. It aims to find gaps in knowledge and form agreement on a certain topic. This may occur through a systematic review. Systematic reviews combine results from many studies to accurately reach an overall conclusion.
- [4. Quantitative research](https://beatckd.org/lesson/4-quantitative-research/) - Quantitative research focuses on numbers. Quantitative analysis aims to find patterns, links, and predictions in the data set. The research may aim to answer a question or test a hypothesis or prediction. There are different types of quantitative research. For example: Descriptive which is an overall summary of the variables. Correlational which determines the relationship
- [3. Qualitative research](https://beatckd.org/lesson/3-qualitative-research/) - Qualitative research helps to answer the ‘how’ and‘why’ of an issue. It allows participants to share perspectives and experiences. Qualitative research aims to describe, understand and explore a topic or idea. Qualitative research has many strengths including: Understand the ‘why’ of the results Examine the topic in depth Various methods e.g. focus groups, interviews,
- [2. What are Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs)?](https://beatckd.org/lesson/2-what-are-patient-reported-outcomes-pros-and-patient-reported-outcome-measures-proms/) - Kidney disease and treatments can affect patients in many different ways – some good some not so good. These effects are outcomes. Examples include life participation, pain, tiredness, itching, appetite. Researchers look at treatments and measure these outcomes in their research project. For example in a clinical trial comparing treatments to see which is better.
- [1. Module 5 learning outcomes](https://beatckd.org/lesson/module-5-learning-outcomes/) - Learning outcomes for this module: In this module we will learn about different types of research. 1. To understand what patient-centred outcomes (PROs) and patient-centred outcomes measures (PROMs) and patient-reported experience measures (PREMs) are, why and how they are used. 2. To understand what qualitative research is and the different qualitative methods. 3. To
- [3. How to read and interpret research papers](https://beatckd.org/lesson/3-how-to-read-and-interpret-research-papers/) - There are many different parts of research articles. The key parts are outlined below. Title The title of the article is a summary of the study. It may include the research method used. Authors and affiliations Who wrote the article and their organisation or university affiliation. Plain language summary Plain language summaries are
- [4. Types of consumer involvement in research  ](https://beatckd.org/lesson/types-of-consumer-involvement-in-research/) - Types of consumer involvement in research There are many ways consumers can be take part in research. Consumer engagement refers to ways consumers have contact with the health system, and research. This includes newsletters or information sessions to hear about recent research. Consumer participation in research refers to taking part as a participants in
- [7. Extra resources](https://beatckd.org/lesson/7-extra-resources/) - Further reading out kidney research Kidney Commute Podcast by the National Kidney Foundation Life as a Nephrologist Podcast by the National Kidney Foundation Hot Topics in Kidney Health Podcast by the National Kidney Foundation Patient Power Podcast - Health Consumers NSW (hcnsw.org.au) Further reading about publications How to write a review article How to
- [6. Where to access reliable and high-quality research regarding kidney health?](https://beatckd.org/lesson/6-where-to-access-reliable-and-high-quality-research-regarding-kidney-health/) - There are many databases to access high quality research including PubMed and PsycINFO. In the Kidney space there are many journals including: KI - Kidney International AJKD - American Journal of Kidney Diseases CJASN – Clinical Journal of the American Society of Nephrology JASN - Journal of the American Society of Nephrology DNT -
- [1. Module 4 learning outcomes](https://beatckd.org/lesson/module-4-learning-outcomes/) - Module 4: Learning outcomes In this module you will learn about different types of research publications. 1. To understand different ways to report research. 2. To understand the purpose for each research publication. 3. To understand how to read and interpret journal articles. 4. To determine if research is high quality. 5. To know where
- [8. Other key organisations in kidney health](https://beatckd.org/lesson/other-key-organisations-in-kidney-health/) - Kidney Health Australia Kidney Health Australia (KHA) is the peak organisation for Kidney Health in Australia. KHA works to deliver vital information, education, support and services. The aim is to ensure good kidney health and quality of life for people with kidney disease. KHA supports research and innovation towards a future without kidney disease.
- [7. SONG - Standardised Outcome in Nephrology](https://beatckd.org/lesson/7-song-standardised-outcome-in-nephrology/) - SONG stands for Standardised Outcomes in Nephrology. It is an international initiative that puts in place a set of core outcomes and outcome measures across kidney disease. Core outcomes are important to patients, caregivers and health professionals. Trials should measure these outcomes. Core outcome measures are short surveys that measure these outcomes. The aim is
- [6. Cochrane Kidney and Transplant](https://beatckd.org/lesson/6-cochrane-kidney-and-transplant/) - Cochrane Kidney and Transplant is part of the international, independent, not-for-profit Cochrane Network. They conduct systematic reviews which bring together all of the research on a single topic to answer a question. Cochrane produces high-quality, up-to-date evidence on the prevention, treatment and management of kidney disease and kidney transplantation. Access more information about Cochrane Kidney
- [5. ANZDATA](https://beatckd.org/lesson/anzdata/) - ANZDATA is the Australian and New Zealand Dialysis and Transplant Registry. It is clinical registry that collects, produces and reports on a range of statistics. These statistics relate to the prevalence and incidence of kidney disease. Prevalence refers to the number of people with a condition during a certain time. Incidence refers to the number
- [3. CARI Guidelines (Caring for Australian and New Zealanders with Kidney Impairment)](https://beatckd.org/lesson/cari-guidelines-caring-for-australian-and-new-zealanders-with-kidney-impairment/) - CARI Guidelines (Caring for Australian and New Zealanders with Kidney Impairment) CARI works to develop and share guidelines for the clinical management of kidney disease (including dialysis and transplant) in Australia and New Zealand. They work with consumers and health professionals to provide up-to-date recommendations based on the best available evidence. Learn more about CARI
- [4. Australasian Kidney Trials Network (AKTN)](https://beatckd.org/lesson/australasian-kidney-trials-network-aktn/) - The Australasian Kidney Trials Network (AKTN) a not-for-profit research group. AKTN designs, conducts, and supports researcher-initiated clinical trials that are meaningful to consumers. They focus on outcomes that are important to consumers. AKTN consists of kidney doctors, nurses, health professionals, researchers, statisticians and data managers. It has successfully completed eleven trials, is running many active
- [2. BEAT-CKD](https://beatckd.org/lesson/beat-ckd/) - The Better Evidence and Translation – Chronic Kidney Disease (BEAT-CKD) works to create high-quality evidence that is co-produced by patients, caregivers and health professionals. This is organised into three streams: training, research and partnership. Training: Ensures patients and researchers have the knowledge, resources and skills required to work together effectively and for high impact.
- [1. Module 3 learning outcomes](https://beatckd.org/lesson/module-3-learning-outcomes/) - Module 3: Learning outcomes In this module you will learn about the organisations involved in BEAT-CKD. 1. To know the key organisations involved in BEAT-CKD and the role they all play. 2. Caring for Australians and New Zealanders with Kidney Impairment (CARI) Guidelines 3. Cochrane Kidney and Transplant 4. Australia and New Zealand Dialysis and
- [1. Module 2 learning outcomes](https://beatckd.org/lesson/1-module-2-learning-outcomes/) - Module 2: Learning outcomes This module will showcase consumers and researchers want to work with each other. 1. To understand why researchers want to involve consumers in research. 2. To understand why consumers should be involved in research. 3. To learn about the highlights of consumer involvement. 4. To learn of examples of consumers
- [8. Extra resources](https://beatckd.org/lesson/8-extra-resources-2/) - Extra resources Hear about more consumer involvement stories from the Australia Clinical Trials Alliance Learn more about becoming involved in health and medical research. Read the Clinical trials alliance tool kit. Hear from Susan Brunton about her involvement as a consumer advisor. Watch the video here.
- [7. Examples of consumer involvement making an impact](https://beatckd.org/lesson/7-examples-of-consumer-involvement-making-an-impact/) - Examples of consumer involvement making an impact SONG – Standardised Outcomes in Nephrology SONG aims to create core outcomes in chronic kidney disease (CKD). This occurs from the shared priorities of patients, caregivers, and health professionals (including doctors, nurses, researchers, policy makers, and many more relevant stakeholders). Patients have been involved in workshops to
- [6. Hear from other consumers](https://beatckd.org/lesson/6-hear-from-other-consumers/) - Hear from Amanda, a kidney transplant recipient and a researcher I am a researcher and consumer. I enjoy being part of research that helps to change practice and outcomes for future treatments. I have the benefit of being involved and seeing new ways to improve care. Being a patient with lived experience is valuable
- [5. What are some of the highlights in involving consumers in research?](https://beatckd.org/lesson/5-what-are-some-of-the-highlights-in-involving-consumers-in-research/) - What are some of the highlights in involving consumers in research? From Dr Erandi Hewawasam Seeing them excel in both personal and professional lives. Conducting impactful research that matters to people. Addressing patient priorities. Brings patient perspectives into research. Translate data heavy findings into consumer-friendly outputs. From Dr Karine Manera Listening to the
- [3. Why do researchers want to involve consumers in research?](https://beatckd.org/lesson/3-why-do-researchers-want-to-involve-consumers-in-research/) - Why do researchers want to involve consumers in research? Hear from Dr Erandi Hewawasam To learn about what patient priorities are. To gain insights into patients’ lived experiences. What worked? What didn’t work? Where could we improve the care? Hear from Dr Karine Manera To ensure that time and resources spent on research will
- [4. Why should consumers be involved in research?](https://beatckd.org/lesson/4-why-should-consumers-be-involved-in-research/) - Why should consumers be involved in research? Become a part of a community. Display and share their lived-experience expertise to add value to the research. Make sure research is relevant to community needs. Learn new things, gain new skills and make use of existing skills. Help put research into practice. Create more focused research. Provide
- [7. Key terms in kidney research](https://beatckd.org/lesson/key-terms-in-kidney-research-both-research-and-medical-terminology/)
- [6. Benefits of consumer involvement in research](https://beatckd.org/lesson/consumer-perspectives-of-challenges-strengths-and-benefits/) - Benefits of consumer involvement in research Benefits for Consumers Improve knowledge about their condition Learn new skills (research, public speaking, technology) Drive research that is relevant and meaningful to them (pick out topics, support plain language summaries) Provide personal perspectives Empower and encourage consumers to have an active role in their health Create
- [3. Why is consumer involvement in research important?](https://beatckd.org/lesson/what-is-consumer-involvement-in-research/) - Why is consumer involvement in research important? Consumer involvement is important to make sure research remains relevant and meaningful considering the needs and interest of consumers. This makes sure research is appropriate, acceptable and accessible to all consumers. Consumers are key to sharing research effectively to promote change with lasting impacts.
- [8. Extra resources](https://beatckd.org/lesson/8-extra-resources/) - Extra resources Consumer Engagement models: What are the ways for consumers and researchers to work effectively together in order to achieve the desired outcomes. To learn more watch this presentation presented by Anne McKenzie (52 minutes) To learn more about the difference between involvement, engagement and participation watch this video (2 minutes)
- [2. Hear from our researchers](https://beatckd.org/lesson/2-hear-from-our-researchers/)
- [Grading](https://beatckd.org/lesson/grading/) - Learn how to grade quizzes in Sensei LMS.
- [Modules](https://beatckd.org/lesson/modules/) - Learn how to create and manage modules in Sensei LMS.
- [Quizzes](https://beatckd.org/lesson/quizzes/) - Learn how to create and manage quizzes in Sensei LMS.
- [Lessons](https://beatckd.org/lesson/lessons/) - Learn how to create and manage lessons in Sensei LMS.
- [Courses](https://beatckd.org/lesson/courses/) - Learn how to create and manage courses in Sensei LMS.
- [Export](https://beatckd.org/lesson/export/) - Learn how to export course content in Sensei LMS.
- [Settings](https://beatckd.org/lesson/settings/) - Contact Teacher To enable site visitors to register for and log in to your courses, go to Settings > General in your WordPress admin and ensure the Membership checkbox is selected: Sensei LMS Settings Sensei LMS's settings can be accessed from the Sensei LMS > Settings menu. They are grouped into several sections: GeneralCoursesLessonsEmail NotificationsLearner
- [Messages](https://beatckd.org/lesson/messages/) - Learn how to manage messages from learners in Sensei LMS.
- [Import](https://beatckd.org/lesson/import/) - Learn how to import course content in Sensei LMS.
- [Learner Management](https://beatckd.org/lesson/learner-management/) - Learn how to manage your learners in Sensei LMS.
- [Analysis](https://beatckd.org/lesson/analysis/) - Learn how to track your learners' course progress in Sensei LMS.
- [Questions](https://beatckd.org/lesson/questions/) - Learn how to create and manage questions in Sensei LMS.

## Quizzes

- [4. Will it make a difference?](https://beatckd.org/quiz/4-will-it-make-a-difference/)
- [1. Module 6 learning outcomes](https://beatckd.org/quiz/1-module-6-learning-outcomes-2/)
- [1. Module 1 learning outcomes](https://beatckd.org/quiz/1-module-1-learning-outcomes/)
- [5. What skills and qualifications do consumers need?](https://beatckd.org/quiz/5-what-skills-and-qualifications-do-consumers-need-2/)
- [3. What can consumers contribute to research?](https://beatckd.org/quiz/3-what-can-consumers-contribute-to-research/)
- [2. Why should consumers become involved in research?](https://beatckd.org/quiz/2-why-should-consumers-become-involved-in-research/)
- [1. Module 13 learning outcomes](https://beatckd.org/quiz/1-module-13-learning-outcomes-2/)
- [9. HyperRESEARCH](https://beatckd.org/quiz/9-hyperresearch-2/)
- [8. R Studio](https://beatckd.org/quiz/8-r-studio-2/)
- [7. Covidence](https://beatckd.org/quiz/7-covidence-2/)
- [6. Endnote](https://beatckd.org/quiz/6-endnote-2/)
- [5. Microsoft Excel](https://beatckd.org/quiz/5-microsoft-excel-2/)
- [3. Microsoft Word](https://beatckd.org/quiz/3-microsoft-word-2/)
- [4. PowerPoint](https://beatckd.org/quiz/4-powerpoint-2/)
- [3. Microsoft Word](https://beatckd.org/quiz/3-microsoft-word/)
- [2. Zoom](https://beatckd.org/quiz/2-zoom-2/)
- [1. Module 15 learning outcomes](https://beatckd.org/quiz/1-module-15-learning-outcomes/)
- [6. Extra resources](https://beatckd.org/quiz/7-extra-resources-2/)
- [4. How to involve consumers at your next scientific conference](https://beatckd.org/quiz/5-how-to-involve-consumers-at-your-next-scientific-conference/)
- [5. Co-authorship opportunities on research papers](https://beatckd.org/quiz/6-co-authorship-opportunities-on-research-papers/)
- [3. How to involve consumers in grants](https://beatckd.org/quiz/4-how-to-involve-consumers-in-grants/)
- [8. Extra resources](https://beatckd.org/quiz/8-extra-resources-4/)
- [7. Examples of consumer involvement making an impact](https://beatckd.org/quiz/7-examples-of-consumer-involvement-making-an-impact-2/)
- [6. Hear from other consumers](https://beatckd.org/quiz/6-hear-from-other-consumers-2/)
- [5. What are some of the highlights in involving consumers in research?](https://beatckd.org/quiz/5-what-are-some-of-the-highlights-in-involving-consumers-in-research-2/)
- [4. Why should consumers be involved in research?](https://beatckd.org/quiz/4-why-should-consumers-be-involved-in-research-2/)
- [3. Why do researchers want to involve consumers in research?](https://beatckd.org/quiz/3-why-do-researchers-want-to-involve-consumers-in-research-2/)
- [2. Hear from our researchers](https://beatckd.org/quiz/2-hear-from-our-researchers-2/)
- [1. Module 2 learning outcomes](https://beatckd.org/quiz/1-module-2-learning-outcomes-2/)
- [8. Extra resources](https://beatckd.org/quiz/8-extra-resources-3/)
- [7. Key terms in kidney research](https://beatckd.org/quiz/7-key-terms-in-kidney-research/)
- [6. Benefits of consumer involvement in research](https://beatckd.org/quiz/6-benefits-of-consumer-involvement-in-research/)
- [5. How are consumers involved in research?](https://beatckd.org/quiz/5-how-are-consumers-involved-in-research-2/)
- [4. Types of consumer involvement in research  ](https://beatckd.org/quiz/4-types-of-consumer-involvement-in-research/)
- [3. Why is consumer involvement in research important?](https://beatckd.org/quiz/3-why-is-consumer-involvement-in-research-important/)
- [2. Research and consumer involvement](https://beatckd.org/quiz/2-research-and-consumer-involvement-2/)
- [1. Module 1 learning outcomes](https://beatckd.org/quiz/learning-outcomes-module-1/)
- [1. Module 7 learning outcomes](https://beatckd.org/quiz/1-module-7-learning-outcomes-2/)
- [2. The research cycle](https://beatckd.org/quiz/2-the-research-cycle-2/)
- [3. The research question](https://beatckd.org/quiz/3-the-research-question-2/)
- [4. Setting priorities](https://beatckd.org/quiz/4-setting-priorities-2/)
- [5. Identifying and designing interventions](https://beatckd.org/quiz/5-identifying-and-designing-interventions-2/)
- [6. Selecting outcomes](https://beatckd.org/quiz/6-selecting-outcomes-2/)
- [7. Translation: knowledge application](https://beatckd.org/quiz/7-translation-knowledge-application-2/)
- [8. Dissemination](https://beatckd.org/quiz/8-dissemination-2/)
- [9. Implementation](https://beatckd.org/quiz/9-implementation-2/)
- [1. Module 1 learning outcomes](https://beatckd.org/quiz/1-module-1-learning-outcomes-3/)
- [1. Module 12 learning outcomes](https://beatckd.org/quiz/1-module-12-learning-outcomes-2/)
- [2. Hear from other consumers and researchers about their experience](https://beatckd.org/quiz/2-hear-from-other-consumers-and-researchers-about-their-experience-2/)
- [3. How to deliver a presentation: presentation slides](https://beatckd.org/quiz/3-how-to-deliver-a-presentation-presentation-slides-2/)
- [4. How to deliver a presentation: public speaking](https://beatckd.org/quiz/4-how-to-deliver-a-presentation-public-speaking-2/)
- [5. How to share your story appropriately in the context of research](https://beatckd.org/quiz/5-how-to-share-your-story-appropriately-in-the-context-of-research-2/)
- [1. Module 11 learning outcomes](https://beatckd.org/quiz/1-module-11-learning-outcomes-2/)
- [2. Types of remuneration](https://beatckd.org/quiz/2-types-of-remuneration-2/)
- [3. Policy](https://beatckd.org/quiz/3-policy-2/)
- [4. Confidentiality](https://beatckd.org/quiz/4-confidentiality-2/)
- [5. Conflicts of interest](https://beatckd.org/quiz/5-conflicts-of-interest-2/)
- [6. Data storage](https://beatckd.org/quiz/6-data-storage-2/)
- [7. Administrative skills](https://beatckd.org/quiz/7-administrative-skills-2/)
- [3. How can consumers become involved in conferences and workshops?](https://beatckd.org/quiz/3-how-can-consumers-become-involved-in-conferences-and-workshops-2/)
- [4. Tips for consumers at conferences](https://beatckd.org/quiz/4-tips-for-consumers-at-conferences-2/)
- [1. Module 9 learning outcomes](https://beatckd.org/quiz/1-module-9-learning-outcomes-2/)
- [2. Research grants and types of grants](https://beatckd.org/quiz/2-research-grants-and-types-of-grants-2/)
- [3. Applying for funding](https://beatckd.org/quiz/3-applying-for-funding-2/)
- [4. Ethics approval](https://beatckd.org/quiz/4-ethics-approval-2/)
- [5. Research grants and review process](https://beatckd.org/quiz/5-research-grants-and-review-process-2/)
- [7. What will I be doing?](https://beatckd.org/quiz/7-what-will-i-be-doing-2/)
- [8. What can I expect of the people I will be working with?](https://beatckd.org/quiz/8-what-can-i-expect-of-the-people-i-will-be-working-with-2/)
- [4. How do you know whether research is reliable and high-quality?](https://beatckd.org/quiz/4-how-do-you-know-whether-research-is-reliable-and-high-quality-2/)
- [5. How to access reliable high-quality research?](https://beatckd.org/quiz/5-how-to-access-reliable-high-quality-research/)
- [6. Where to access reliable and high-quality research regarding kidney health?](https://beatckd.org/quiz/6-where-to-access-reliable-and-high-quality-research-regarding-kidney-health-2/)
- [7. Extra resources](https://beatckd.org/quiz/7-extra-resources-3/)
- [1. Module 5 learning outcomes](https://beatckd.org/quiz/1-module-5-learning-outcomes-2/)
- [2. What are Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs)?](https://beatckd.org/quiz/2-what-are-patient-reported-outcomes-pros-and-patient-reported-outcome-measures-proms-2/)
- [3. Qualitative research](https://beatckd.org/quiz/3-qualitative-research-2/)
- [4. Quantitative research](https://beatckd.org/quiz/4-quantitative-research-2/)
- [5. Evidence Synthesis and systematic reviews](https://beatckd.org/quiz/5-evidence-synthesis-and-systematic-reviews-2/)
- [6. Clinical guidelines](https://beatckd.org/quiz/6-clinical-guidelines-2/)
- [7. Epidemiology and social epidemiology](https://beatckd.org/quiz/7-epidemiology-and-social-epidemiology-2/)
- [1. Module 6 learning outcomes](https://beatckd.org/quiz/1-module-6-learning-outcomes/)
- [2. Data registries](https://beatckd.org/quiz/2-data-registries-2/)
- [3. Data linkage](https://beatckd.org/quiz/3-data-linkage-2/)
- [4. Clinical trials](https://beatckd.org/quiz/4-clinical-trials-2/)
- [5. Biostatistics](https://beatckd.org/quiz/5-biostatistics-2/)
- [6. Health economics](https://beatckd.org/quiz/6-health-economics-2/)
- [7. Evaluation](https://beatckd.org/quiz/7-evaluation-2/)
- [1. Module 8 learning outcomes](https://beatckd.org/quiz/1-module-8-learning-outcomes-2/)
- [2. Benefit of consumers being involved at conferences and workshops](https://beatckd.org/quiz/2-benefit-of-consumers-being-involved-at-conferences-and-workshops-2/)
- [1. Module 3 learning outcomes](https://beatckd.org/quiz/1-module-3-learning-outcomes-2/)
- [2. BEAT-CKD](https://beatckd.org/quiz/2-beat-ckd/)
- [3. CARI Guidelines (Caring for Australian and New Zealanders with Kidney Impairment)](https://beatckd.org/quiz/3-cari-guidelines-caring-for-australian-and-new-zealanders-with-kidney-impairment/)
- [5. ANZDATA](https://beatckd.org/quiz/5-anzdata/)
- [4. Australasian Kidney Trials Network (AKTN)](https://beatckd.org/quiz/4-australasian-kidney-trials-network-aktn/)
- [8. Other key organisations in kidney health](https://beatckd.org/quiz/8-other-key-organisations-in-kidney-health/)
- [6. Cochrane Kidney and Transplant](https://beatckd.org/quiz/6-cochrane-kidney-and-transplant-2/)
- [7. SONG - Standardised Outcome in Nephrology](https://beatckd.org/quiz/7-song-standardised-outcome-in-nephrology-2/)
- [1. Module 4 learning outcomes](https://beatckd.org/quiz/1-module-4-learning-outcomes-2/)
- [2. Types of publications in research](https://beatckd.org/quiz/2-types-of-publications-in-research-2/)
- [3. How to read and interpret research papers](https://beatckd.org/quiz/3-how-to-read-and-interpret-research-papers-2/)
- [1. Module 1 learning outcomes](https://beatckd.org/quiz/1-module-1-learning-outcomes-2/)
- [2. Why patients should be involved in setting priorities?](https://beatckd.org/quiz/2-why-patients-should-be-involved-in-setting-priorities/)
- [4. Framework for setting research priorities: REPRISE](https://beatckd.org/quiz/4-framework-for-setting-research-priorities-reprise/)
- [3. Frameworks for setting research priorities: James Lind Alliance](https://beatckd.org/quiz/3-frameworks-for-setting-research-priorities-james-lind-alliance/)
- [1. Module 5 learning outcomes](https://beatckd.org/quiz/1-module-5-learning-outcomes/)
- [4. Values in consumer involvement](https://beatckd.org/quiz/4-values-in-consumer-involvement/)
- [3. Frameworks for consumer involvement in research](https://beatckd.org/quiz/3-frameworks-for-consumer-involvement-in-research/)
- [2. Strategies for effective consumer involvement](https://beatckd.org/quiz/2-strategies-for-effective-consumer-involvement/)
- [1. Module 4 learning outcomes](https://beatckd.org/quiz/1-module-4-learning-outcomes/)
- [2. Where can consumers be involved?](https://beatckd.org/quiz/2-where-can-consumers-be-involved/)
- [1. Module 3 learning outcomes](https://beatckd.org/quiz/1-module-3-learning-outcomes/)
- [5. How to share your story appropriately in the context of research](https://beatckd.org/quiz/5-how-to-share-your-story-appropriately-in-the-context-of-research/)
- [5. Research grants and review process](https://beatckd.org/quiz/5-research-grants-and-review-process/)
- [4. Ethics approval](https://beatckd.org/quiz/4-ethics-approval/)
- [8. Dissemination](https://beatckd.org/quiz/8-dissemination/)
- [3. The research question](https://beatckd.org/quiz/3-the-research-question/)
- [7. Evaluation](https://beatckd.org/quiz/7-evaluation/)
- [7. Epidemiology and social epidemiology](https://beatckd.org/quiz/7-epidemiology-and-social-epidemiology/)
- [5. How to access reliable high-quality research?](https://beatckd.org/quiz/how-and-where-to-access-reliable-high-quality-research/)
- [4. How do you know whether research is reliable and high-quality?](https://beatckd.org/quiz/4-how-do-you-know-whether-research-is-reliable-and-high-quality/)
- [5. How are consumers involved in research?](https://beatckd.org/quiz/5-how-are-consumers-involved-in-research/)
- [2. Research and consumer involvement](https://beatckd.org/quiz/research-and-consumer-involvement/)
- [9. Implementation](https://beatckd.org/quiz/9-implementation/)
- [7. Translation: knowledge application](https://beatckd.org/quiz/7-translation-knowledge-application/)
- [6. Selecting outcomes](https://beatckd.org/quiz/6-selecting-outcomes/)
- [5. Identifying and designing interventions](https://beatckd.org/quiz/5-identifying-and-designing-interventions/)
- [4. Setting priorities](https://beatckd.org/quiz/4-setting-priorities/)
- [2. Types of publications in research](https://beatckd.org/quiz/2-types-of-publications-in-research/)
- [2. The research cycle](https://beatckd.org/quiz/2-the-research-cycle/)
- [1. Module 7 learning outcomes](https://beatckd.org/quiz/1-module-7-learning-outcomes/)
- [7. Administrative skills](https://beatckd.org/quiz/7-administrative-skills/)
- [6. Data storage](https://beatckd.org/quiz/6-data-storage/)
- [5. Conflicts of interest](https://beatckd.org/quiz/5-conflicts-of-interest/)
- [4. Confidentiality](https://beatckd.org/quiz/4-confidentiality/)
- [3. Policy](https://beatckd.org/quiz/3-policy/)
- [2. Types of remuneration](https://beatckd.org/quiz/2-types-of-remuneration/)
- [1. Module 11 learning outcomes](https://beatckd.org/quiz/1-module-11-learning-outcomes/)
- [2. Top tips from researchers and consumers for consumers](https://beatckd.org/quiz/2-top-tips-from-researchers-and-consumers-for-consumers/)
- [1. Module 10 learning outcomes](https://beatckd.org/quiz/1-module-10-learning-outcomes/)
- [5. What skills and qualifications do consumers need?](https://beatckd.org/quiz/5-what-skills-and-qualifications-do-consumers-need/)
- [3. Why should consumers become involved in research?](https://beatckd.org/quiz/3-why-should-i-become-involved-in-research/)
- [6. Will it make a difference?](https://beatckd.org/quiz/6-will-it-make-a-difference/)
- [7. What will I be doing?](https://beatckd.org/quiz/7-what-will-i-be-doing/)
- [4. What can consumers contribute to research?](https://beatckd.org/quiz/4-what-can-consumers-contribute-to-research/)
- [8. What can I expect of the people I will be working with?](https://beatckd.org/quiz/8-what-can-i-expect-of-the-people-i-will-be-working-with/)
- [4. How to deliver a presentation: public speaking](https://beatckd.org/quiz/4-how-to-deliver-a-presentation-public-speaking/)
- [3. How to deliver a presentation: presentation slides](https://beatckd.org/quiz/3-how-to-deliver-a-presentation-presentation-slides/)
- [2. Hear from other consumers and researchers about their experience](https://beatckd.org/quiz/2-hear-from-other-consumers-and-researchers-about-their-experience/)
- [1. Module 12 learning outcomes](https://beatckd.org/quiz/1-module-12-learning-outcomes/)
- [9. HyperRESEARCH](https://beatckd.org/quiz/9-hyperresearch/)
- [8. R Studio](https://beatckd.org/quiz/8-r-studio/)
- [7. Covidence](https://beatckd.org/quiz/7-covidence/)
- [6. Endnote](https://beatckd.org/quiz/6-endnote/)
- [5. Microsoft Excel](https://beatckd.org/quiz/5-microsoft-excel/)
- [4. PowerPoint](https://beatckd.org/quiz/4-powerpoint/)
- [2. Zoom](https://beatckd.org/quiz/2-zoom/)
- [1. Module 13 learning outcomes](https://beatckd.org/quiz/1-module-13-learning-outcomes/)
- [3. Applying for funding](https://beatckd.org/quiz/3-applying-for-funding/)
- [2. Research grants and types of grants](https://beatckd.org/quiz/2-research-grants-and-types-of-grants/)
- [1. Module 9 learning outcomes](https://beatckd.org/quiz/1-module-9-learning-outcomes/)
- [4. Tips for consumers at conferences](https://beatckd.org/quiz/4-tips-for-consumers-at-conferences/)
- [3. How can consumers become involved in conferences and workshops?](https://beatckd.org/quiz/3-how-can-consumers-become-involved-in-conferences-and-workshops/)
- [2. Benefit of consumers being involved at conferences and workshops](https://beatckd.org/quiz/2-benefit-of-consumers-being-involved-at-conferences-and-workshops/)
- [1. Module 8 learning outcomes](https://beatckd.org/quiz/1-module-8-learning-outcomes/)
- [6. Health economics](https://beatckd.org/quiz/6-health-economics/)
- [5. Biostatistics](https://beatckd.org/quiz/5-biostatistics/)
- [4. Clinical trials](https://beatckd.org/quiz/4-clinical-trials/)
- [3. Data linkage](https://beatckd.org/quiz/3-data-linkage/)
- [2. Data registries](https://beatckd.org/quiz/2-data-registries/)
- [1. Module 6 learning outcomes](https://beatckd.org/quiz/6383/)
- [6. Clinical guidelines](https://beatckd.org/quiz/6-clinical-guidelines/)
- [5. Evidence Synthesis and systematic reviews](https://beatckd.org/quiz/5-evidence-synthesis-and-systematic-reviews/)
- [4. Quantitative research](https://beatckd.org/quiz/4-quantitative-research/)
- [3. Qualitative research](https://beatckd.org/quiz/3-qualitative-research/)
- [2. What are Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs)?](https://beatckd.org/quiz/2-what-are-patient-reported-outcomes-pros-and-patient-reported-outcome-measures-proms/)
- [1. Module 5 learning outcomes](https://beatckd.org/quiz/module-5-learning-outcomes/)
- [3. How to read and interpret research papers](https://beatckd.org/quiz/3-how-to-read-and-interpret-research-papers/)
- [4. Types of consumer involvement in research  ](https://beatckd.org/quiz/types-of-consumer-involvement-in-research/)
- [7. Extra resources](https://beatckd.org/quiz/7-extra-resources/)
- [6. Where to access reliable and high-quality research regarding kidney health?](https://beatckd.org/quiz/6-where-to-access-reliable-and-high-quality-research-regarding-kidney-health/)
- [1. Module 4 learning outcomes](https://beatckd.org/quiz/module-4-learning-outcomes/)
- [8. Other key organisations in kidney health](https://beatckd.org/quiz/other-key-organisations-in-kidney-health/)
- [7. SONG - Standardised Outcome in Nephrology](https://beatckd.org/quiz/7-song-standardised-outcome-in-nephrology/)
- [6. Cochrane Kidney and Transplant](https://beatckd.org/quiz/6-cochrane-kidney-and-transplant/)
- [5. ANZDATA](https://beatckd.org/quiz/anzdata/)
- [3. CARI Guidelines (Caring for Australian and New Zealanders with Kidney Impairment)](https://beatckd.org/quiz/cari-guidelines-caring-for-australian-and-new-zealanders-with-kidney-impairment/)
- [4. Australasian Kidney Trials Network (AKTN)](https://beatckd.org/quiz/australasian-kidney-trials-network-aktn/)
- [2. BEAT-CKD](https://beatckd.org/quiz/beat-ckd/)
- [1. Module 3 learning outcomes](https://beatckd.org/quiz/module-3-learning-outcomes/)
- [1. Module 2 learning outcomes](https://beatckd.org/quiz/1-module-2-learning-outcomes/)
- [8. Extra resources](https://beatckd.org/quiz/8-extra-resources-2/)
- [7. Examples of consumer involvement making an impact](https://beatckd.org/quiz/7-examples-of-consumer-involvement-making-an-impact/)
- [6. Hear from other consumers](https://beatckd.org/quiz/6-hear-from-other-consumers/)
- [5. What are some of the highlights in involving consumers in research?](https://beatckd.org/quiz/5-what-are-some-of-the-highlights-in-involving-consumers-in-research/)
- [3. Why do researchers want to involve consumers in research?](https://beatckd.org/quiz/3-why-do-researchers-want-to-involve-consumers-in-research/)
- [4. Why should consumers be involved in research?](https://beatckd.org/quiz/4-why-should-consumers-be-involved-in-research/)
- [7. Key terms in kidney research](https://beatckd.org/quiz/key-terms-in-kidney-research-both-research-and-medical-terminology/)
- [6. Benefits of consumer involvement in research](https://beatckd.org/quiz/consumer-perspectives-of-challenges-strengths-and-benefits/)
- [3. Why is consumer involvement in research important?](https://beatckd.org/quiz/what-is-consumer-involvement-in-research/)
- [8. Extra resources](https://beatckd.org/quiz/8-extra-resources/)
- [2. Hear from our researchers](https://beatckd.org/quiz/2-hear-from-our-researchers/)
- [Grading](https://beatckd.org/quiz/grading/)
- [Quizzes](https://beatckd.org/quiz/quizzes/)
- [Lessons](https://beatckd.org/quiz/lessons/)
- [Modules](https://beatckd.org/quiz/modules/)
- [Courses](https://beatckd.org/quiz/courses/)
- [Export](https://beatckd.org/quiz/export/)
- [Settings](https://beatckd.org/quiz/settings/)
- [Messages](https://beatckd.org/quiz/messages/)
- [Import](https://beatckd.org/quiz/import/)
- [Learner Management](https://beatckd.org/quiz/learner-management/)
- [Analysis](https://beatckd.org/quiz/analysis/)
- [Questions](https://beatckd.org/quiz/questions/)

## Certificates

- [eea5acb9](https://beatckd.org/certificate/eea5acb9/)

## Categories

- [Uncategorized](https://beatckd.org/category/uncategorized/)
- [Events](https://beatckd.org/category/events/)
- [Past Events](https://beatckd.org/category/events/past-events/)
- [Newsletter](https://beatckd.org/category/newsletter/)
- [Annual Reports](https://beatckd.org/category/annual-reports/)

## Service Categories

- [Evaluation](https://beatckd.org/service_category/evaluation/)
- [Implementation](https://beatckd.org/service_category/implementation/) - Translating research findings into routine clinical care and policy through wide stakeholder engagement
- [Identification](https://beatckd.org/service_category/identification/) - Identifying promising new interventions to improve patient outcomes
- [SONG](https://beatckd.org/service_category/song/)
- [PREVENT-ADPKD](https://beatckd.org/service_category/prevent-adpkd/)
- [ANZDATA: Organ Allocation](https://beatckd.org/service_category/anzdata-organ-allocation/)
- [Home](https://beatckd.org/service_category/home/)

## Modules

- [Module 1: Introduction to consumer involvement in research](https://beatckd.org/modules/introduction-to-consumer-involvement-in-research/) - Welcome to our consumer training course. This course aims to equip patients and caregivers with the knowledge, resources and skills required to work together with researchers effectively and for high impact. Our first module is an introduction to consumer involvement in research and patient partnership.
- [Module 2: Impact of consumer involvement](https://beatckd.org/modules/module-2-impact-of-consumer-involvement/) - In this module you will hear from consumers and researchers about the impact of consumer involvement in research.
- [Module 3. Organisations](https://beatckd.org/modules/module-3-organisations/) - In this module you will learn about the organisations involved in BEAT-CKD.
- [Module 4: Types of research publications](https://beatckd.org/modules/module-4-types-of-research-publications/) - In this module you will learn about the different types of research publications.
- [Module 5: Types of research 1](https://beatckd.org/modules/module-5-types-of-research/) - In this module you will learn about the different types of research methods.
- [Module 7: The research cycle](https://beatckd.org/modules/module-7-the-research-cycle/) - In this module you will learn about each stage of the research cycle.
- [Module 6: Types of research 2](https://beatckd.org/modules/module-6/) - In this module you will continue to learn about the different types of research methods.
- [Module 8: Conferences and workshops](https://beatckd.org/modules/module-8/) - In this module you will learn about how to become involved in conferences and workshops.
- [Module 9: Research funding and grants](https://beatckd.org/modules/module-9/) - In this module you will learn about the different types funding and the grant process.
- [Module 10: Frequently asked questions](https://beatckd.org/modules/module-10/) - In this module we will answer frequently asked questions about consumer involvement in research.
- [Module 13: Programs](https://beatckd.org/modules/module-13-programs/) - In this module you will learn about the different programs often used in research.
- [Module 12: Communication and presentation skills](https://beatckd.org/modules/12-communication-and-presentation-skills/) - In this module you will learn about to communicate and present research confidently.
- [Module 11: Practical information](https://beatckd.org/modules/module-11-practical-information/) - In this module you will learn about practical information about becoming involved in research.
- [Module 3: Involving consumers in research](https://beatckd.org/modules/module-3-involving-consumers-in-research/) - In this module you will learn how to involve consumers in research.
- [Module 4: Principles and strategies for consumer involvement](https://beatckd.org/modules/module-4-principles-and-strategies-for-consumer-involvement/) - In this module you will learn principles and strategies for consumer involvement.
- [Module 5: Setting Research Priorities](https://beatckd.org/modules/module-5-setting-research-priorities/) - In this module you will learn about setting research priorities.
- [Module 1. Introduction to consumer involvement in research](https://beatckd.org/modules/module-1-introduction-to-consumer-involvement-in-research/) - Welcome to our researcher training course. Our first module is an introduction to consumer involvement in research and patient partnership.
- [Module 2. Impact of consumer involvement](https://beatckd.org/modules/module-2-impact-of-consumer-involvement-2/) - In this module you will hear from consumers and researchers about the impact of consumer involvement in research.
- [Module 7: Selecting outcomes](https://beatckd.org/modules/module-7-researcher/) - In this module you will learn about selecting outcomes of importance for consumers.
- [Module 8: Translating and disseminating research](https://beatckd.org/modules/module-8-translation-dissemination/) - In this module you will learn about translating and disseminating research with and to consumers.
- [Module 9: Defining expectations and tasks for consumers](https://beatckd.org/modules/module-9-expectations/) - In this module you will learn about defining expectations and tasks for consumers.
- [Module 10: Making consumer engagement sustainable](https://beatckd.org/modules/module-10-sustainable/) - In this module you will learn how to ensure consumer engagement remains sustainable.
- [Module 11: Ensuring diversity](https://beatckd.org/modules/module-11-diversity/) - In this module you will learn of tips to ensure diversity amongst your consumer network.
- [Module 12: Communication and presentation skills](https://beatckd.org/modules/module-12-communication/) - In this module you will learn how to communicate effectively to consumers.
- [Frequently asked questions](https://beatckd.org/modules/module-13-faq/) - In this module you will learn answers to frequently asked questions on consumer involvement.
- [Programs](https://beatckd.org/modules/module-15-programs/) - In this module you will learn about programs that may be helpful for research with consumers.