Examples of consumer involvement making an impact
SONG – Standardised Outcomes in Nephrology
SONG aims to create core outcomes in chronic kidney disease (CKD). This occurs from the shared priorities of patients, caregivers, and health professionals (including doctors, nurses, researchers, policy makers, and many more relevant stakeholders). Patients have been involved in workshops to create core outcomes in CKD. This ensures the patient and caregiver voice is heard to guide the design of interventions.
M-FIT (Structured exercise prograM to reduce Fatigue In patients receiving dialysis: an adaptive Trial)
M-FIT is a structured exercise program to reduce fatigue in patients receiving dialysis. The M-FIT team held a workshop with patients, caregivers, and health professionals to develop the exercise program. M-FIT has a consumer advisory board which contributes to the development of the program. The exercise program is delivered through an app is easy to use for patients receiving dialysis.