Researcher training

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Module 4: Principles and strategies for consumer involvement

4. Values in consumer involvement

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Value  Definition 
Support  Ensure both consumers and researchers are provided with adequate support including funding, time and resources. For example, debriefing sessions after workshops/meetings; flexible meeting times/formats; responding to requests for help/information in a timely manner; having a point-of-contact for one-on-one support. 
Engagement  Create a patient-centred culture making time for all consumers. Engage early on and through a varying of networks including existing relationships. 
Education  Ensure consumers understand the research field and are equipped to be involved. This includes stages of research, types of research, and types of publications. 
Connection  Ensure mutual respect in a welcoming environment that fosters relationships with consumers. For example, allow time for social interaction before or after activities (meetings/workshops) e.g. provide morning tea or lunch; include ice-breaker activities to allow people to get to know each other on a more personal level. 
Community  Build a community that is diverse, inclusive and accessible. Ensure the team and environment are culturally component.  
Empowerment  Create a safe and support environment recognising and valuing the input of consumers.  
Trust  Establish a foundation of rapport and trust with consumers. 
Respect  Ensure respect for consumers. Particularly regarding level of involvement, capacity, ability and willingness to be involved. For example, set aside dedicated time in meetings for consumer input.